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Subject: "Newly diagnosed and just...in shock"     Previous Topic | Next Topic
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ash_sk8s
Member since Jun-14-11
3 posts
Jun-14-11, 11:55 PM (CST)
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"Newly diagnosed and just...in shock"
 
   I was diagnosed earlier today with genital herpes. I'm pretty much still completely in shock over it and don't know what to think. It sucks to think that this is something I have to live with for the rest of my life. The only person who knows is my boyfriend - he took me to the doctor and he has been amazingly supportive. I'm assuming I probably got it from him since he's the only person I have slept with in the last 5 months or so, but he's never had any symptoms. I feel bad putting all of this on a pretty new relationship (we've kind of dated off and on, but just within the last week or so are back on and better than ever). I guess I'm pretty lucky that he is standing right there by my side. This is just so scary to me...I feel like every stereotype there is right now. It just seems like one of those things that you think will never happen to you but...here it is. I don't even know how to process it right now. I've been just trying to forget about it all day, but as soon as I stop to think about it I just feel awful. I guess I still need a few days to process it, but thought that finding some support would be really beneficial...


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  Subject     Author     Message Date     ID  
  RE: Newly diagnosed and just...in shock D_C_87 Jun-24-11 1
     RE: Newly diagnosed and just...in shock Raven00144 Jun-25-11 2
         RE: Newly diagnosed and just...in shock prettygirl07 Aug-19-11 3
             RE: Newly diagnosed and just...in shock Raven00144 Aug-20-11 4
                 RE: Newly diagnosed and just...in shock prettygirl07 Aug-24-11 5
                     RE: Newly diagnosed and just...in shock prettygirl07 Aug-24-11 6
                         RE: Newly diagnosed and just...in shock Lenoreadmin Aug-24-11 7

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D_C_87
Member since Jun-24-11
1 posts
Jun-24-11, 12:40 PM (CST)
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1. "RE: Newly diagnosed and just...in shock"
In response to message #0
 
   I was just diagnosed this morning, like you were I am in total shock.


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Raven00144
Member since Sep-9-07
2375 posts
Jun-25-11, 07:28 AM (CST)
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2. "RE: Newly diagnosed and just...in shock"
In response to message #1
 
   Everyone of us has felt the same way as you are feekling right now. I can attest to this. . . IT DOES GET BETTER.

Do you know our type as in HSVI or HSVII? How were you diagnosed? A visual diagnosis can be wrong around 70% of the time and needs to be followed up with further type testing. The best test is to have a sore swabbed/cultured (Very painful) as this will tell you your type and the location whereas a blood test looks for antibodies. It takes most people 12-16 weeks post exposure to develop these antibodies. This test will also tell you what you are positive/negative for but if positive, it will not tell you the location of such infection sans symptoms. A blood test that is positive for HSVI usually means that it is oral but is could also be genital. Many more people will test positive for HSV1 and never remember ever getting a cold sore as this is usually gotten as children and we just do not remember things from being so young. Oral HSV1 is the most contagious of HSVs in the oral location than when in the genital location. Most new cases of genital HSV1 is from getting oral sex from someone that has a history of cold sores.

The best thing to do is to find out your type. Once you know your type you can become better educated on it and this will help when deciding on what type of precautions you and your partner take.

This virus can be managed.

This is the place to come to for support and to learn about your virus. There is no question that is too dumb and there is never giving of TMI (too much info).

You may or may not have gotten this virus form our curremt b/f--you could have gotten it from anyone that you have had sex with including oral sex as most people do not know that they have this virus. One in 4 women/5 men will test positive for HSVII and about 90% of these 'in' will be surprised at the results as they have either had NO symptoms or MILD ones that they could blame n something else--thereby still having sex and possibly spreading this virus without even knowing it. This virus is tricky and you may get an OB soon after exposure to it or you may never get a true OB or it may lay dormant for a long time before rearing its head.

A good thing to remember is that you are not contagious 24/7.
Raven00144


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prettygirl07
Member since Aug-19-11
3 posts
Aug-19-11, 01:57 PM (CST)
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3. "RE: Newly diagnosed and just...in shock"
In response to message #2
 
   Your story really put me at ease...somewhat. I can still hear my DR. saying "HSV" and I started sobbing. My story...
I have been with my husband for 5 years, we have a child and we have both been faithful. I don't have any doubt. What I am lost about...I am checked every year, never dreamed of having HSV, until a few days ago I felt a bump come up, so I thought ok...and ingrown hair. Instead it got bigger, then another and another for a total of 5 bumps all together. I was in a lot of pain...most of the websites say "no pain and most have no symptoms for HSV" So I figured...nah I can't have Herpes. I make my appt. thinking I have staph or an ingrown hair...maybe even a vaginal ulcer (this seemed to make more sense than HSV) Hearing the words HSV coming out of my DR's mouth alarmed me. I was in complete shock, I felt dirty, and super nasty. I kept telling him...I swear I am a good person. He replied back to me that we wouldn't know for sure until the results came back from the culture test. Then he wanted to see me back in a few weeks. My husband has been totally supportive with me. We are just confused to when and where we got it.

A few questions that I have---1. Can I lay in the tanning bed?
2. Do I have to use a different bar of soap each time I take a bath. (seperate from the rest of the family)
3. If I am using a wash cloth while showering during a break out....will I not spread the virus to other locations?
4. When will I know if it is safe to have sex? We want to extend our family.

MS


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Raven00144
Member since Sep-9-07
2375 posts
Aug-20-11, 07:10 AM (CST)
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4. "RE: Newly diagnosed and just...in shock"
In response to message #3
 
   You may want to call the doctor to make sure that your test will be typed as in HSVI or HSVII--in the event that your results are positive. A swab/culture of a sore is the best but yet painful test to get as it will tell you the location. A blood test looks for antibodies and it takes most people 12-16 weeks post exposure to develop these antibodies that the test looks for. This type of test will tell you what you have and if typed, the type but not the location.

This virus is tricky and it may be very difficult to determine where it came from without prior testing. Even if you ask to be tested for everything, HSV is not tested for in the normal panel of testing--you have to specifically ask to be tested for it. Why? I cannot answer this and I have not found an answer as to why.

LIke I mentioned above, one in 4 women/5 men will test positive for HSVII and 90% of these people will be surprised as they have either had MILD symptoms or NO symptoms. Many more people will test positive for HSVI which is usually oral cold sores and not ever remember getting a cold sore. Oral HSVI (OHSVI) is the most contagious of HSVs in this location as it sheds (virus comes to the skin without causing an outbreak)more often than HSVII does in the genital location. If you have received oral sex from your husband (or anyone else ever) and they have a history of oral HSVI, then it is possible that you have HSVI in the genital area. Anyone that has sex can get HSV of either type in either location. This is why it is important to know your type.

If this is truely a new virus to you, then you may have not developed the antibodies as of yet and it could be possible to spread this to other locations on your body, but this is very slim.

Different people have different triggers that can cause an OB (outbreak). I have had this virus for over 20 years and I live at the beach. I also start the tanning season out by going to a tanning bed, except for this year. You may need to test this out to see if it is a trigger for you or not.
Seperate bars of soap--I had a man live with me for years and we both liked different brands of soap so we had our own bars. As an adult, I have never shared a bar of soap. I think just for hygienic sake, I would have my own bar of soap as well as my own wash cloth and towel. Once you have the established antibodies, you cannot reinfect yourself with what you already have in another location via a wash cloth, but I would not tempt fate so to speak. Soap and water will kill the virus and the virus dies once it dries out. With or without HSV, I would never use a wash cloth on my genitals and then use it on my face, but each person is different.
As soon as the sores heal you may resume sex. You want to avoid sex during an OB as this can be painful, but an open sore is an openning to the body where other germs may enter. There are many couples here that have had children and one partner has HSV and the other does not and it has been this way for years. You can still have an extended family.

I know this is much information, but the first thing you need to know is IS THIS HSV and if so what is the TYPE. Once you know your type you may become better educated on it.

Let us know your results and better yet, you may post them here and they can be better explained to you so ask for a hard copy of your results.

Raven00144


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prettygirl07
Member since Aug-19-11
3 posts
Aug-24-11, 10:00 AM (CST)
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5. "RE: Newly diagnosed and just...in shock"
In response to message #4
 
   Just wondering...During an OB do certain foods make you sick to your stomach? Since I have had my first OB greasy fast foods make me super sick to my stomach.

MS


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prettygirl07
Member since Aug-19-11
3 posts
Aug-24-11, 04:03 PM (CST)
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6. "RE: Newly diagnosed and just...in shock"
In response to message #5
 
   UPDATE: I called the DR's office about the swab they did. Mine came back negative. Now I don't know what to do. I am some what relieved but then again I am not. They want me to come back in a few weeks to do blood work. Any suggestions or comments?

MS


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Lenoreadmin
Member since Oct-22-04
4277 posts
Aug-24-11, 04:14 PM (CST)
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7. "RE: Newly diagnosed and just...in shock"
In response to message #6
 
   A negative culture can just mean that there wasn't enough virus on the swab to grow.......like the sore already started to heal. All you can really do is what your doctor suggested and go back in a few weeks for blood work.


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