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Subject: "high risk hpv and abnormal pap"     Previous Topic | Next Topic
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upsetandconfused
Member since Jun-29-07
7 posts
Jun-29-07, 12:01 PM (CST)
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"high risk hpv and abnormal pap"
 
   Wow! What a shocker. I have had normal paps for my whole sexual history, was married for 20 years and have had a new partner for 10 yrs. My gyn says that I had to have contracted this is the past 2 1/2 yrs since I turn up with ascus pap smear now? She asks if present partner has been unfaithful. He swears no, but I am now wondering and devastated that I may have cervical problem and that bf has been cheating!!!!! Is is possible that I could have had this long before and came out now. I know all the info i'm getting says anything is possible. This raises so many questions. I've so far had 1 colpo with biopsies and now doc wants me to have leep with D & C. Colpo showed cervix had no dysplasia, but there are "strange" undefined cells higher up in the endocervix. She says this may or may not be cancer. I am scared, hurt, devastated. Can anyone help?


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  Subject     Author     Message Date     ID  
  RE: high risk hpv and abnormal pap Addictivegrl81 Jun-29-07 1
     RE: high risk hpv and abnormal pap auntiejessiadmin Jun-29-07 2
         RE: high risk hpv and abnormal pap upsetandconfused Jun-29-07 3
     RE: high risk hpv and abnormal pap upsetandconfused Jun-29-07 4
         RE: high risk hpv and abnormal pap auntiejessiadmin Jun-29-07 5
             RE: high risk hpv and abnormal pap gfcadmin Jun-30-07 6
                 RE: high risk hpv and abnormal pap upsetandconfused Jul-01-07 7
             RE: high risk hpv and abnormal pap upsetandconfused Jul-01-07 8
                 RE: high risk hpv and abnormal pap auntiejessiadmin Jul-01-07 9
                     RE: high risk hpv and abnormal pap upsetandconfused Jul-03-07 10
                     RE: high risk hpv and abnormal pap upsetandconfused Jul-06-07 11
                         RE: high risk hpv and abnormal pap windyadmin Jul-06-07 12
                             RE: high risk hpv and abnormal pap auntiejessiadmin Jul-06-07 13

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Addictivegrl81
Member since May-30-07
812 posts
Jun-29-07, 07:52 PM (CST)
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1. "RE: high risk hpv and abnormal pap"
In response to message #0
 
   LAST EDITED ON Jun-29-07 AT 07:53 PM (CST)
 
I dont know any info about this. I just had my biopsy and diagnosis on tuesday and am worried as hell. I just wanted to tell you to hang in there ...your not alone

~addictivegrl~


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auntiejessiadmin
Member since May-14-05
18073 posts
Jun-29-07, 08:42 PM (CST)
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2. "RE: high risk hpv and abnormal pap"
In response to message #1
 
Hi there -

Anything is possible. Most info says that it wouldn't take that long to show up, but I work in an std clinic, and see this with some frequency.

If this is the only indication that you have that your hubby might have cheated, its not a good enough sign to prove it.

What steps are you taking next for treatment?

Good luck!!

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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upsetandconfused
Member since Jun-29-07
7 posts
Jun-29-07, 09:41 PM (CST)
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3. "RE: high risk hpv and abnormal pap"
In response to message #2
 
   Well since you work in an STD clinic, you are a great source of info. They say the docs, (GYN) don't know as much about it as we might think, so putting our trust in everything they say is not good. It's not so much the hubby I'm worried about cheating as my doctor says that it was not my husband I got it from and that it is the boyfriend from the past 10 yrs - as this is something she believes after exposure, length of time to start showing signs of abnormal paps is 2 to 2 1/2 yrs. She was pretty adamant about it too and asked if I thought he may had been with others - which ofcourse put that idea in my head as I thought trusted we were monogamous and he says he was not unfaithful. However, I think he may have had many partners in the past, but doesn't seem to think he has anything. Especially since there isn't a way to check in men unless you have the wart kind and mine is the high risk cancer type. It's affected our relationship as I am wondering if he was unfaithful. If we've been together for 10 yrs. and she says this was contracted probably 2 yrs. ago, that says he was cheating. Because how can I have "active" virus as they did hpv test after having abnormal pap from so many years earlier. I am totally lost, not to mention I never thought I have this problem as my history was not a promiscuous one. As far as treatment, I've already had the colpo and biopsy which shows the cervix free of dysplasia, but odd looking cells further up. So she wants to have extensive LEEP done in the hospital and to do a D&C also. Who would have ever thought having sex could lead to cancer. Unbelievable! Thanks for your reply.


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upsetandconfused
Member since Jun-29-07
7 posts
Jun-29-07, 09:44 PM (CST)
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4. "RE: high risk hpv and abnormal pap"
In response to message #1
 
   Thanks for your support. What was your diagnosis? This is such a sketchy thing because it seems like there is so much conflicting information out there which can confuse and make things worse. There is a lot of hysteria over this and I am quite frankly very concerned as I am wondering how the heck after so many years is this showing up now.


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auntiejessiadmin
Member since May-14-05
18073 posts
Jun-29-07, 10:17 PM (CST)
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5. "RE: high risk hpv and abnormal pap"
In response to message #4
 
LAST EDITED ON Nov-06-13 AT 10:08 AM (CST) by Rajah (admin)
 
Oops sorry - I meant your current partner.

First, you wouldn't test positive unless it was active. If its been dormant, it wouldn't show up.

Lets say your current partner was infected before you all met, 10 years ago. Maybe it was dormant for 5 years, and when it became active 5 years ago, you were infected.

It could have remained dormant for you for 5 years, and just now become active.

And that's assuming you have HPV. Was your HPV test positive, or did you only have ASCUS results?

That brings me to my next point. ASCUS means Atypical Squamous Cells of Undetermined Significance. Its considered a mild abnormality. I am not at all sure why she is saying it might be cancer, because it really would have come back as something much greater if it were.

Here are a couple of links for you -

http://www.womenshealthnetwork.com/sexualityandfertility/ascuspaptestacronyms.asp

http://www.medicinenet.com/pap_smear/page6.htm

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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gfcadmin
Member since Sep-2-06
300 posts
Jun-30-07, 08:26 PM (CST)
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6. "RE: high risk hpv and abnormal pap"
In response to message #5
 
   Hi there,
HPV is believed to be able to lie dormant for long periods of time, in both men and women. Your partner may have picked it up previous to you and never known. The virus may have been dormant for a long period and resurfaced in the last few years - or this may have been true of you.
As AJ mentioned an ASCUS pap is a mild condition, however a pap smear does not generally do a great job of checking the endocervical cells. It sounds like your cervix looks relatively healthy but your endocervical cells are more abnormal. The D&C will give them a better understanding of how the cells in your endocervix are doing.
IMO it is not the place of your gyn. to try to convince you of your partner's infidelity with a virus like HPV where there is still so much uncertainty surrounding transmission, latency, etc... It is however her job to give you clear straight-forward answers about what they do and don't know about your current condition and the possible options for the future. If you don't feel she is giving you this I would try to find a new gyn.
Let us know how things progress and what we can do to help
-gfc


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upsetandconfused
Member since Jun-29-07
7 posts
Jul-01-07, 06:32 PM (CST)
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7. "RE: high risk hpv and abnormal pap"
In response to message #6
 
   Thanks so much for your support. Yes, I had to do a reality check on my GYN doctor as I thought she was definitely out of line with some of her questions AND answers. This woman was doing the coloposcopy and when she first started, we were looking at the screen where she and I could view the whole the whole procedure. She says about three times, "this doesn't look good". Now here I am nervous as hell and lying there with her saying it doesn't look good. I kept saying, what do you mean it doesn't look good and she was pointing to different areas on the screen to show me. She then said, "did you have both your children by C section?" as the canal opening was small and I said no. She began taking swabs of tissue from this area. Then she tooks quite a few biopsies from the cervical area. So when I go back for the results, she begins reading some of the pathology report and says that the pathologist had her look at some of the slides - because there were what they labeled as "dysplastic" and "degenerative" looking cells, but recommended further biopsies of the endocervix. This is where she then said to me did I want to have the LEEP in the office or be put out in the hospital. I asked what she thought and she said "it's up to you". She says "how were you with the pain during the colposcopy"? She said that she would be taking a bigger "chunk" of biopsy, but that we could do this in the office. I said since it sounds more extensive, I would probably be better under general anesthesia. What kind of option is that - I mean I would prefer if it was going to be a regular LEEP, I could do it in the office with the usual local anesthetic. But by her offering an option, ofcourse I'm thinking it's gonna be more painful!!!! Now I'm not only nervous and worried, but thinking this lady is whacky!!!! And yes I agree it terrible of her to plant this info about the unfaithfulness in my mind - the whole thing is making me crazy!!! You can't talk to too many people about this subject either which is why I'm searching like a maniac on the internet for answers. And yes, it was ASCUS. After I said to her, "was it possible that that abnormality or "cancer" could be in the uterus, that's when she said we'll do the D & C also while you're under". Now I'm wondering if I really need a D & C either!! Now I might have to go looking for other doctors about this besides it all. She also said kind of matter of factly, "it could be cancer, it may not; it may not be anything".
Sorry for this lengthy note, but I need someone's help with this.


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upsetandconfused
Member since Jun-29-07
7 posts
Jul-01-07, 06:42 PM (CST)
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8. "RE: high risk hpv and abnormal pap"
In response to message #5
 
   Hi there again. Thanks so much for your reply. Yes, the pap did come back as ASCUS. She did the coloposcopy and we were both viewing the cervix on a screen. She said about 3 different times, "this doesn't look good". (I also replied to another post below yours with this same information). However, when I went to see her for the results of the colpo, she said the pathologists asked her to look at the slides also - as they were odd being somewhat "dysplastic" and "degenerative". She says kind of matter of factly, "this could be cancer or may not be; it might not be anything". As I replied in the post below, this whole thing has me crazy and I think she is contributing to this uncertaintly, but I'm afraid to change during this problem. Oh, by the way, the area that she said "doesn't look good", just the cervical area in general -- this showed normal results on the pathology report from the colposcopy!!! First of all, if she is an experienced doctor and doesn't think it looks good, why tell the patient that during the procedure? SEcond of all, how come it was okay after she said it doesn't look good? Sorry for all this rambling, but this whole thing has me crazy!!!! (Not to mention that she was so sure this had to happen in the past 2 to 2 1/2 yrs. (exposure to HPV) as it couldn't have gone this long dormant. She says I was married for all that time and never had an abnormal pap smear and then I have a new partner and the HPV test is positive. This is enough to make somebody go insane!!!!!


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auntiejessiadmin
Member since May-14-05
18073 posts
Jul-01-07, 07:12 PM (CST)
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9. "RE: high risk hpv and abnormal pap"
In response to message #8
 
Ugh.

Personally, if it were me, I would gather all records from this, and get a second opinion before I let this woman do a LEEP or anything on me.

Ask your friends who they like, and then call and explain what is happening, and see who can get you in soonest. This is ridiculous.

You need a doc who helps CALM your fears, not contribute to them.

I don't know where you live, but we have a doc's list on our home page, and if you go to www.westoverheights.com they have a doc's list there too. All those doc's have been recommended by people who have herpes and/or hpv.

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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upsetandconfused
Member since Jun-29-07
7 posts
Jul-03-07, 09:38 AM (CST)
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10. "RE: high risk hpv and abnormal pap"
In response to message #9
 
   Thank you! This is what I was believing, but it's so hard when you are upset. I've had this woman for a long time, but never had to have anything done, only paps. I really appreciate your advice and input.


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upsetandconfused
Member since Jun-29-07
7 posts
Jul-06-07, 01:33 PM (CST)
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11. "RE: high risk hpv and abnormal pap"
In response to message #9
 
   Hi there again. I can't seem to find any docs specializing in std's. I went to the web site westoverheights and the doc info page is down. I think it might be rare to find a doc who specializes in just this. Anyway, I'm looking in the state of New York. I am strongly considering another doc, at least for a 2nd opinion; it's hard though, because once a doc has all your history and has done the testing and biopsy, you kind of have to start all over. But in this case it might be worth it, because I don't think she is supportive at all and very judgmental. Who needs that! I did a google search to no avail. I may just have to go by word of mouth.


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windyadmin
Charter Member
8254 posts
Jul-06-07, 01:55 PM (CST)
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12. "RE: high risk hpv and abnormal pap"
In response to message #11
 
You don't have to start over completely from scratch. Pick a doctor who's affiliated with a different hospital or in a different city. Better if it's a teaching hospital. Have your doctor send your records over (or give you a copy to take with you.) She should understand if you want to get a second opinion before having anything done. And if she doesn't understand, then that is her problem, not yours.



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auntiejessiadmin
Member since May-14-05
18073 posts
Jul-06-07, 03:25 PM (CST)
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13. "RE: high risk hpv and abnormal pap"
In response to message #12
 
All gynos should have knowledge of this, and won't necessarily list STDs as a specialty.

I don't know where you are in the state of NY, but here are some HELP groups in NY and maybe you can contact them and ask who they recommend for docs -

http://www.ashastd.org/herpes/herpes_helpgrplist.cfm#ny

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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