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Subject: "Please help"     Previous Topic | Next Topic
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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 08:51 AM (CST)
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"Please help"
 
   My Pap smear came back... I have abnormal cells for the first time. Don't know anything more.

Please tell me what I should do next... what I should ask. I'm so lost. I can't believe I got both HPV and HSV-2 from one encounter. I am just so broken.


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  Subject     Author     Message Date     ID  
  RE: Please help auntiejessiadmin Jan-16-09 1
     RE: Please help curewillcome Jan-16-09 2
         RE: Please help curewillcome Jan-16-09 3
             RE: Please help Angelika Jan-16-09 4
                 RE: Please help curewillcome Jan-16-09 5
                     RE: Please help curewillcome Jan-16-09 6
                         RE: Please help curewillcome Jan-16-09 7
                             RE: Please help auntiejessiadmin Jan-16-09 8
                                 RE: Please help Angelika Jan-16-09 9
                                 RE: Please help curewillcome Jan-16-09 10
                                     RE: Please help Angelika Jan-16-09 11
                                     RE: Please help curewillcome Jan-16-09 12
                                         RE: Please help Angelika Jan-16-09 13
                                             RE: Please help curewillcome Jan-16-09 14
                                             RE: Please help Angelika Jan-16-09 15
                                             RE: Please help curewillcome Jan-16-09 16
                                             RE: Please help Angelika Jan-16-09 17
                                             RE: Please help C16679admin Jan-16-09 18
                                             RE: Please help auntiejessiadmin Jan-16-09 19
                                             RE: Please help stellarindia01 Feb-19-09 30
             RE: Please help lilybrooke Jan-17-09 20
                 RE: Please help gfcadmin Jan-17-09 21
                     RE: Please help Angelika Jan-17-09 22
                         RE: Please help lilybrooke Jan-18-09 23
                             RE: Please help Angelika Jan-18-09 24
                                 RE: Please help curewillcome Jan-18-09 25
                                     RE: Please help windyadmin Jan-18-09 26
                                         RE: Please help curewillcome Feb-04-09 27
                                             RE: Please help gfcadmin Feb-04-09 28
                                             RE: Please help Angelika Feb-05-09 29
  RE: Please help john2223 May-28-15 31

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auntiejessiadmin
Member since May-14-05
18073 posts
Jan-16-09, 09:40 AM (CST)
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1. "RE: Please help"
In response to message #0
 
You need to find out what the exact results were. Paps can be abnormal from everything to a yeast infection, sex within 24-48 hours before the pap, HPV, etc. Results are sort of at levels - how abnormal they are.

If you can get those results, we can help you figure out what it might be.

Have you only had one partner? If you've had more than one, you will likely never know for sure if its all from the same person or not. 80% of people will have hpv in their lifetimes, and if you've had 3 or more partners, its almost guaranteed that you will get it.

Aj

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 10:37 AM (CST)
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2. "RE: Please help"
In response to message #1
 
   LAST EDITED ON Jan-16-09 AT 10:50 AM (CST)
 
I spoke to the doctor -- she said "ASCUS" in low levels. I asked her if it was high risk or low risk and she couldn't tell me?!?

She said to wait 4 months and go back in again for another look because 50% of these ASCUS results clear up on their own. But I am not the sort who can wait 4 months... I am going in on Monday to my local sexual health clinic to get a referral to a gynecologist to get a colposcopy ASAP.

I've had two partners (8 years ago and 4 years ago -- all protected) and one encounter that wasn't consensual and involved no condom about 10 months ago. I got HSV-2 from him. And now I probably have HPV from him too. What a joke since I'm in the middle of getting my Gardasil shots.


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 10:46 AM (CST)
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3. "RE: Please help"
In response to message #2
 
   Could an ASCUS result be caused by any of the HPV strains or just high risk ones? Could it be caused by one of the genital warts causing strains?


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Angelika
Member since Aug-18-08
2252 posts
Jan-16-09, 10:55 AM (CST)
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4. "RE: Please help"
In response to message #3
 
   LAST EDITED ON Jan-16-09 AT 10:57 AM (CST)
 
ASCUS can be anything, usually when you get an ASCUS result, they will test you for HPV. if you test for high risk HPV they might just wait and do another pap perhaps in six months or they might give you colposcopy and perhaps biopsy so they can look at your cervix more closely.

I had an ASCUS pap smear with high risk HPV and turned out to have moderate cervical dysplasia. This is uncommon however and many times ASCUS might just mean some inflammation or just them not getting good cell sample b/c of something.

it's strange that she didn't know if there was HPV i thought they routinely test for that if pap comes back ASCUS. Waiting as your doctor recommends is a common approach, cervical changes are generally very slow progressing so waiting four months most likely wouldn't hurt. even after i got diagnosed with moderate cervical dysplasia my doctor said that we could wait a few months before deciding to treat it. but if you feel like you might want colposcopy, that's fine too.

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 11:04 AM (CST)
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5. "RE: Please help"
In response to message #4
 
   I'm a wreck... I can barely handle the HSV-2... I thought I could but I'm back to square 1...

I asked specifically if she could tell what strain of HPV it was and she said that it couldn't but that only the cervical cancer causing ones were the only ones would show up in the Pap smear is this true? (I've thought that I *might* have a wart but wasn't sure...) But again, I asked her specifically WHAT the test said and she just said that the results were "ASCUS".

I'm going to get the colposcopy ASAP because otherwise I will just drive myself insane(r). So is there always a biopsy involved with the colposcopy? She said something about using a dye... if they don't see anything with the dye will they still biopsy?


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 11:12 AM (CST)
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6. "RE: Please help"
In response to message #5
 
   From this site (http://www.usask.ca/cme/articles/abnormalpap.shtml), I got this:

3. What is the role of HPV testing in the presence of an ASCUS pap smear?

If we were able to test for HPV presence at the time of an ASCUS pap smear, we would be able to tell if the abnormality was related to the presence of this virus, and a possible source of future dysplasia. If HPV is not present then the abnormality is not "dysplastic" and therefore the patient can be reassured that more intensive monitoring is not necessary. However, we do not have the ability to test for HPV either easily or economically at this time.


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 11:31 AM (CST)
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7. "RE: Please help"
In response to message #6
 
   I spoke to my doctor again (who has ZERO bedside manner) and she said that an HPV specific test was definitely NOT done but that I should proceed directly to the colposcopy for peace of mind. Is this right?!?!?!

On an unrelated note -- she also said that she tested for yeast, BV (although she gave me the prescription based on what my other doctor told me) and chlamydia (cultures), all of which came back negative but I KNOW that my vagina is not right -- there's an ongoing burning sensation which comes back several times a day (sometimes stronger than others). I took Flagyl for ten days, felt some relief for a few days and now it's back (but not as bad mostly)...

I just want to rip out my vagina right now...


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auntiejessiadmin
Member since May-14-05
18073 posts
Jan-16-09, 11:40 AM (CST)
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8. "RE: Please help"
In response to message #7
 
LAST EDITED ON Nov-06-13 AT 10:07 AM (CST) by Rajah (admin)
 
http://www.webmd.com/a-to-z-guides/abnormal-paps

http://cervicalcancer.about.com/od/screening/a/ASCUS_pap.htm

http://www.womenshealthnetwork.com/sexualityandfertility/ascuspaptestacronyms.aspx

ASCUS really can be anything. All it means is minor irritation and/or inflammation. This can be from yeast, sex, HPV, etc. If you had bv, that could be causing this.

I know its hard, but this is really not that alarming, medically speaking.

If you have insurance that will pay for the colpo, then get it done if it will help you relax.

Aj

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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Angelika
Member since Aug-18-08
2252 posts
Jan-16-09, 11:48 AM (CST)
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9. "RE: Please help"
In response to message #8
 
   LAST EDITED ON Jan-16-09 AT 11:53 AM (CST)
 
yes they will not test for a specific strain so you will for example not find out if you have strain 16 or 18 but they should test to find out if it's the high risk cancer causing kind or not.

she is saying that there was no HPV test done at all? that is strange. hmmm. i wonder if you can just have that done instead of going straight to the colpo. ask her about just geting an HPV test done.

the problem with pap is that it doesn't really tell you exactly what you have. as i've said before i had an ASCUS pap with high risk HPV and so i decided to have colposcopy and biopsy and turned out to have moderate cervical dysplasia. which means that my pap should have come out as HSIL which is High grade squamous intraepithelial lesion if in fact it was correct.

now i don't think this is necessarily common so i wouldn't freak out if i were you. this is just what happened to me and even my doctor was surprised. but, it is possible so you might want to follow up with the colposcopy IF there was also high risk HPV present. on the other hand, you might just want to wait the four months. this is a very slowly progressing issue in most cases. there is really no need to panic.

they don't always do biopsy if they don't find any areas that are out of the ordinary. but, biopsy is common as it is the actual diagnostic test b/c it will actually tell you what you have. pap is just a screening test.

there is no need to have colposcopy if you don't have high risk HPV and you only have ascus pap. so get the hpv test done first.

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 11:57 AM (CST)
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10. "RE: Please help"
In response to message #8
 
   No insurance... how much would a colposcopy cost?


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Angelika
Member since Aug-18-08
2252 posts
Jan-16-09, 11:59 AM (CST)
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11. "RE: Please help"
In response to message #10
 
   i am trying to remember, i paied for it out of pocket as well - i have insurance but with a high deductible so don't use it for doctor's visits, i believe it was about 400. you might be able to get it cheaper at a public health place if they offer that i don't know, this is at a regular gynecologist office.

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 12:03 PM (CST)
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12. "RE: Please help"
In response to message #10
 
   LAST EDITED ON Jan-16-09 AT 12:08 PM (CST)
 
Angelika, I think you may have missed one of my (many) posts -- she said that they don't typically run the test for HPV at all (cost seemed to be the main factor) and that I should proceed directly to the colposcopy for peace of mind -- she was very firm on both points.

I'm also not quite clear: would the warts kind of HPV show up in Pap smear or only just the cervical cancer causing ones?

And what is this "low level" of cells business?!? What does THAT mean?


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Angelika
Member since Aug-18-08
2252 posts
Jan-16-09, 12:25 PM (CST)
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13. "RE: Please help"
In response to message #12
 
   thats very strange. i was under the impression that hpv test is standard after an ascus pap. are you getting this at a low cost clinic? maybe that's the reason.

i guess you have couple options. you can wait a few months and then get another pap (i would recommend you get it at a regular gynecologist office so they will run the hpv test if your pap is abnormal again - paps are not expensive, maybe just over 100 bucks, usually you get a discount too if you pay right away, i get 20 percent or you can usually pay some money up front, at my doctor's office it's 50 bucks and then you can be billed for the rest).

or you can do the colposcopy now. it's just really not needed if you don't have high risk HPV so it seems like an overkill right now. it's really ridiculous that they wouldn't test for HPV, i mean that really determines whether or not you should have other tests.

i am not sure if the HPV test will also screen for the warts causing kind of HPV, they generally look for the high risk types b/c those are the only ones relevant as far as cervical cancer risk.

by low level of cells do you mean this?
LSIL
low-grade squamous intraepithelial lesion. The word lesion refers to an area of abnormal tissue; intraepithelial means that the abnormal cells are present only in the surface layer of cells. Considered a mild abnormality.

this is generally not a problem and doesn't need to be treated, only watched. most of these cases return to normal on their own.

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 12:37 PM (CST)
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14. "RE: Please help"
In response to message #13
 
   LAST EDITED ON Jan-16-09 AT 12:38 PM (CST)
 
I'm getting it in Canada, if that matters. And it was at my regular GP's office. So the pap was free but the HPV test isn't covered -- would cost $200.

I really just don't think that I can wait for another Pap, this is so incredibly stressful for me. And the more stress, the more the HSV-2 acts up.

What I mean is does ASCUS (NOT the HPV test) indicate the genital warts strains? Because I've had a suspicious small bump on the lower lip of my vagina for several months now...

LSIL - I suppose that's what low levels could mean... like I said, her bedside manner isn't great, she just kept repeating that there were very few affected cells. Does LSIL necessarily correlate with a definite HPV infection? What exactly is a "mild abnormality"?

Thanks to you both by the way, this has made me feel better and much more informed.


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Angelika
Member since Aug-18-08
2252 posts
Jan-16-09, 12:47 PM (CST)
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15. "RE: Please help"
In response to message #14
 
   LAST EDITED ON Jan-16-09 AT 12:48 PM (CST)
 
the truth is she can't really know if there are very few affected cells or not unless she gives you colposcopy and possibly biopsy.

pap smear is a screening test not a diagnostic test which means that further evaluation is needed to really figure out what's going on.

generally though if you have an ASCUS result it just means that it could only be an infection or inflammation or perhaps low grade cervical dysplasia which means mild abnormality and usually goes back to normal on its own. here are the different results you can get after a pap smear.

Normal (no abnormal cells seen) No abnormal cells
likely next step: Pap test in 1 to 3 years, depending on age and other factors

ASC-US (atypical squamous cells of undetermined significance) Cells look unusual but donít look exactly like dysplasia (75% of women with an ASC-US result have no abnormal cervical cells, but to be safe all women need additional testing or evaluation)
likely next step: One of the following:
HPV test; if this is positive, then colposcopy; if negative, then Pap test in 1 year
Pap test in 4 to 6 months
Colposcopy

LSIL (Low-grade squamous intra-epithelial lesions) Mildly abnormal cells (most women with a LSIL result have HPV infection, which will usually go away on its own, but to be safe all women need additional evaluation)
likely next step: Colposcopy

HSIL (High-grade squamous intra-epithelial lesions) Moderately to severely abnormal cells (all women need further evaluation)
likely next step: Colposcopy

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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curewillcome
Member since Dec-22-08
82 posts
Jan-16-09, 12:55 PM (CST)
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16. "RE: Please help"
In response to message #15
 
   LAST EDITED ON Jan-16-09 AT 12:57 PM (CST)
 
A few more questions before I go for now, if that's okay?

So what else could be the cause of this ASCUS pap? (ie what is the "etc" that you and Jessi are putting). It's definitely not sex, let me tell you.

Like I said, my genitals have been feeling off (burning mostly, a little sore) but she tested and I was negative for BV and yeast. Is there something else that could be causing this? How does one check for vaginitis?

Also, how does the HSV-2 play into this, if at all?


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Angelika
Member since Aug-18-08
2252 posts
Jan-16-09, 01:04 PM (CST)
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17. "RE: Please help"
In response to message #16
 
   LAST EDITED ON Jan-16-09 AT 01:05 PM (CST)
 
A common cause of ASCUS Pap smears are minor infection and cervical inflammation. Infection and inflammation can cause cervical cells to appear abnormal, but eventually return to a normal appearance.

For some women, an ASCUS result is due to changes in the cervical cells caused by HPV infection. In most cases, these cervical changes do not progress to cervical cancer, but require further monitoring and possible treatment to prevent cervical cancer.

also having sex, douching, using tampons or even some blood from your period being present (if you went close to your period).

there was one study which showed that high risk hpv infection along with coinfection with hsv2 can cause cervical changes more often than hpv infection alone. here it is if you want to read it: http://www.cancer.org/docroot/NWS/content/NWS_1_1x_Study_Herpes_Virus_Linked_To_Cervical_Cancer.asp

HPV is still needed to be present however. herpes alone doesn't cause cervical changes.

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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C16679admin
Member since Aug-29-06
9733 posts
Jan-16-09, 01:23 PM (CST)
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18. "RE: Please help"
In response to message #15
 
   Especially if money is an issue, you might try to take what Auntiejessi said under advisement. If ASCUS results can even be caused by other vaginal infections AND you're having vaginal symptoms right now, I wouldn't panic and I'd try to get THAT part (the vaginal symptoms) worked out first.

If you had yeast, it could have given you BV, and I know you said you treated with Flagyl. That also could bounce you back to another yeast infection possibly. I don't think you mentioned Strep B? Did they check for that? Also Poswife recently enlightened us about CV which is an overgrowth of the normal good bacteria in the vagina...and it's possible that the other treatments could have caused an overgrowth of good stuff. Those are just some ideas.

I'm sorry you're going through all this. I'm sure it must be hard not to panic, but I don't think it is necessarily something awful at this point. Like the others said, often waiting a few months and doing another pap is the course of action.

Take care,

C.


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auntiejessiadmin
Member since May-14-05
18073 posts
Jan-16-09, 01:57 PM (CST)
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19. "RE: Please help"
In response to message #18
 
Anything that can irritate or inflame the cervix can cause this. It might be high risk hpv, but it can be bv, yeast, group b strep, sex, a reaction to condoms or lube, irritation from your period or tampons - I say "etc" because the list is endless.

GFC might be able to explain what's covered and what isn't, on the Canadian health care system. I'm sure she'll be along at some point.

Aj

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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stellarindia01
Member since Feb-19-09
21 posts
Feb-19-09, 05:48 AM (CST)
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30. "RE: Please help"
In response to message #14
 
   LSIL - I suppose that's what low levels could mean... like I said, her bedside manner isn't great, she just kept repeating that there were very few affected cells.

Lisa11


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lilybrooke
Member since Aug-30-08
408 posts
Jan-17-09, 09:40 AM (CST)
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20. "RE: Please help"
In response to message #3
 
   LAST EDITED ON Jan-17-09 AT 11:21 AM (CST)
 
ASCUS is the lowest degree of abnormality. ASCUS means a few cells that are not clearly abnormal but not clearly normal (clear as mud?) and is a definable step down from LSIL (there's no lesion in the former, but there is in the latter). Yours is probably caused by hpv, but there's no telling which classification of hpv: low, intermediate or high risk. Now if we were dealing with HSIL, then the hpv test would be useless bc HSIL does not occur in the absence of hrhpv.

Of course, this all depends on the skill of your pathologist and whether your pap was read correctly. (Or, if Canada is anything like the US, the cytotech with one year of training who has 100s of slides to review. (sarcasm)) Did you have liquid cytology, which increases accuracy?

I'm not sure how the Canadian health care system works, but here's an idea. You might call the pathologist and ask him for a more detailed interpretation than simply "ASCUS." Ask him what he saw. Koilocytes? Bi/multinucleation? I tried to do this, bc I had more than one unfavorable finding in my last pap and in the latter, the dictation was truncated leaving the result meaningless, but the path wouldn't speak to me without intervention from my gyn. That really pissed me off bc my gyn had no clue what the truncated finding meant either, but refused to intervene saying only the LSIL part mattered, but it's probably something I could have understood if the path had just talked to me, so whatever. You take what you can get with these doctors.

ASCUS can be caused by non-hpv factors but the likelihood is very low. You all might familiarize yourselves with the Bethesda 2001 cervical cytology reporting guidelines that paths are supposed to follow at least in the US. You'll see that the "other stuff" will be reported as such, e.g. shift in flora consistent with BV, cellular changes consistent with hsv...even the presence of an IUD! This means that correctly-called ASCUS is most likely hpv until proven otherwise. It just does not provide information as to which classification of hpv.

http://www.aafp.org/afp/20031115/1992.html

I won't go into the emotional trauma of having both together other than to acknowledge it. I won't lie, it is very severe and can really bring you down. But hpv is overwhelmingly likely to be cleared by a young, healthy female whether by treatment or watchful waiting. Please try to direct your energies towards finding out exactly what your situation is and how best to manage it.

P.S. I just tried googling what kind of cervical cytology reporting Canada follows, to no avail. It may not be Bethesda 2001. However, US labs are supposed to follow the above reporting standard.


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gfcadmin
Member since Sep-2-06
300 posts
Jan-17-09, 09:33 PM (CST)
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21. "RE: Please help"
In response to message #20
 
   Hey, sorry I'm a little late to get to this thread. It's late so forgive me if I've missed anything - I read through all the previous posts at a rather rapid rate.

Not sure if there are any Canada-specific questions? From what I read above everything is happening as I would expect. HPV tests aren't covered here in women under 30, but all follow up care will be covered (e.g. your next pap - and then if that is still has abnormal results they'll likely send you for a colpo and possible biopsy and that would all be covered too.

Usually, at least in Ontario results read "ASCUS" or "ASCUS - indicating HPV" but sometimes the doc doesn't bother telling you that last bit. The former doesn't mean that it's not HPV, just that they think it's possible it could be something else too, but couldn't determine anything for sure, the former as the name suggests means they believe it is caused by HPV.

It would be extremely difficult to get in touch with the person who read the slide - and I think it would likely be a fruitless and frustrating process.

This is a result that millions and millions of people get every year. Make sure you follow through with the recommended follow up - and then just relax about it. It sounds like you have more than enough stress right now, don't add this to the list.

-gfc


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Angelika
Member since Aug-18-08
2252 posts
Jan-17-09, 11:41 PM (CST)
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22. "RE: Please help"
In response to message #21
 
   LAST EDITED ON Jan-17-09 AT 11:45 PM (CST)
 
not to hijack this thread or anything, but lily i had liquid pap and i still got an ASCUS result when it fact it should have been HSIL. On top of it, i had liquid paps for at least two years before that that were NORMAL. (not sure what kind of paps i had in the years before b/c i had a different gynecologist). My currect doc couldn't tell me if the paps just missed abnormal cells before or if my cervical changes progressed from normal to moderate cervical dysplasia in just one year which would be highly unusual.

i am wondering, is this pretty rare to have such a discrepancy between the pap result and what you actually have?

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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lilybrooke
Member since Aug-30-08
408 posts
Jan-18-09, 01:02 AM (CST)
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23. "RE: Please help"
In response to message #22
 
   LAST EDITED ON Jan-18-09 AT 01:15 AM (CST)
 
That is a significant discrepancy and it happens more often than you think. Paps are just a screening tool, and depending on the lab, a pretty bad one at that. Error margins range from 10% all the way up to 50%. At 50% you start to wonder if the pap is even worth it, especially if your insurance sucks. Common sense says inaccurate paps are always underread, not overread. It's a very superficial scraping.

The best liquid pap I've found is the SurePath. It takes the ENTIRE specimen to the lab without putting it through some centrifuge separator which removes some of the cells in the specimen. The more common liquid pap, ThinPrep (we've all heard of that one, right?) only ends up taking about 1/2 to 2/3 of your pap specimen to the lab. The part that's missing could contain dysplasia, so you'd never know bc it's not on the slide for the tech to read. The gyn I used when I first got hpv used SurePath but he is a complete moron so I stopped going to him, but the gyn I see now who is a bit better uses ThinPrep. She can't go outside of the practice's contract. Sigh.

Liquid paps are better than traditional dry cotton ball swabs (don't know what that's called, but my gyn-onc of all people still uses those!) but by no means perfect. My local lab reports a 10% error margin for liquid paps but I bet it's higher than that.

Finally, paps in the US are rarely reviewed by pathologists. ALL paps are first read by cytotechs. They have one year of training and are not MDs. (Not that being an MD necessarily means you are more knowledgeable or more competent.) I think only the abnormal ones are reread by paths. Paths in most labs perform a random reread of 10% of the normal paps.

But in any lab sample you are relying on a lot of different factors to go right in succession. That a good specimen was obtained, that it was not overprocessed or stored incorrectly or even lost (which once happened to three vials of blood that Quest took from me), that all or enough of the sample made it to the lab for an accurate reading, that the tech wasn't asleep at the wheel, that the reviewing path (if there was one) wasn't either, that the dictation was correctly reported (e.g. not truncated), it goes on!

Pathology, surprisingly, isn't an exact science and paths disagree all the time.

But I swear to god some paths don't know what the hell they are doing bc they recently misread my father's colon polyp as invasive cancer and the man was literally a day away from a colectomy when my brother got his mentors at a teaching institution to reread them and it turned out to be high grade dysplasia with some other feature resembling invasion but not invasion. My brother was soooo ticked. (Of course, we pray that the folks at the teaching institutions are right!)

And then the same lab in town misread my pityriasis rosea as friggin' FOLLICULITIS when the two look NOTHING alike under the microscope and I CLEARY had PR in the classic Langer lines pattern with herald patches and all which was 100% clinically evident. But I suppose my derm could have taken a bad specimen although it is very difficult to imagine having folliculitis on the smooth bare skin of my LOWER BACK.

Have I gone off good and loud now? Way more than you wanted to know, right? Guess I'll step off my soapbox and go to bed now.

Oops, I didn't even answer your question fully. It is rare but not impossible for high grade to develop within a year of nothing. Invasive cancer can develop in as little as 18 months given the right conditions (hpv 16/18 in the wrong body). And I went from a clean colpo and pap in May to lesions in three places including the canal in August of the same year. But more likely you had very mild cell changes that weren't detected. The idea is that a woman who is good about getting hear yearly paps won't progress to cancer even if the pap misses one or two early dysplasias bc it will eventually be picked up.

There is this new test in Europe called oncoFISH cervical that will render the pap obsolete. I'm excited. Some Italian clinics are already using it. Europe is so far ahead of the US with hpv stuff. Abnormal paps there are routinely tested for hpv STRAIN. And strain really matters! All high risk are NOT created equal.

CWC, I hope you will check back in to say you are hanging in there. Did you get the colpo or the HC II or both?


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Angelika
Member since Aug-18-08
2252 posts
Jan-18-09, 02:21 AM (CST)
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24. "RE: Please help"
In response to message #23
 
   you have smooth bare skin on your lower back? you must not be of european descent

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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curewillcome
Member since Dec-22-08
82 posts
Jan-18-09, 07:08 AM (CST)
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25. "RE: Please help"
In response to message #24
 
   LAST EDITED ON Jan-18-09 AT 07:39 AM (CST)
 
Okay, I've calmed down substantially. I'm a little scared about this colposcopy thing but I eat pretty well and I'm young and I'm healthy (except for the HSV-2) so hopefully my body will destroy this thing.

Guys, I have one big question which no one has answered yet -- I think I have a lone genital wart: could this have been the cause of the abnormal pap -- a low risk strain instead of a high risk strain? I would really appreciate your knowledge on this.

And I am also wondering if genital warts can be extremely itchy at times and/or possibly cause localized burning. Because that would explain a lot.


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windyadmin
Charter Member
8256 posts
Jan-18-09, 08:35 AM (CST)
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26. "RE: Please help"
In response to message #25
 
Yes, the low-risk types of hpv can cause a Pap to come back ASCUS. And genital warts can cause itchiness. When I spent some time on a forum devoted to hpv, itching was one of the main complaints from people with warts.


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curewillcome
Member since Dec-22-08
82 posts
Feb-04-09, 08:22 AM (CST)
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27. "RE: Please help"
In response to message #26
 
   Hi everyone. So I finally got a copy of the results from my doctor. I would love to hear your (much more) educated thoughts.

Specimen adequate

Interpretation: Atypical Squamous Cells of Undetermined Significance: the possibility of a low grade squamous intraepithelial lesion cannot be excluded. Evaluation of the abnormality is limited due to scarcity of atypical cells.

Recommendations: recommend a repeat smear in 6 months.

Cervix: normal

Time of specimen: combined/liquid based


Thoughts?


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gfcadmin
Member since Sep-2-06
300 posts
Feb-04-09, 08:31 PM (CST)
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28. "RE: Please help"
In response to message #27
 
   Hey,

So my thoughts are try to relax, eat well, get lots of sleep and head on back in 6 months. If in 6 months you get the same result then demand your doc refer you for a colpo (which at that point your provincial health care should absolutely cover).

Basically the results tell us that they only saw a few abnormal cells - that might be because you only have a few on your cervix, maybe because you've already almost cleared an infection. Or it could mean that the area of the cervix that is infected wasn't well sampled.

Also, it is possible that this is being caused by a low-risk hpv infection - have you had your doc look at the lone wart? If it is a wart then it would be best to get it treated - that would help kickstart your body into fighting the virus.

-gfc


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Angelika
Member since Aug-18-08
2252 posts
Feb-05-09, 00:37 AM (CST)
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29. "RE: Please help"
In response to message #28
 
   i agree with gfc completely. when i had my ascus pap that turned out to really be moderate dysplasia my doctor told me that i could still wait a few months before getting it treated. Generally there is no hurry on treating this since it progresses so slowly.

At this point i would just make sure that you get the follow up and as gfc said try to live as healthily as possible till then.

even if you have something that should be treated, chances are great that there will not be much change within six months.

so just relax and see what happens in half a year.

Who among mortals may boast himself born with a fortune beyond reach of harm? - Aeschylus


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john2223
Member since Mar-21-15
2 posts
May-28-15, 08:49 AM (CST)
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31. "RE: Please help"
In response to message #0
 
   >My Pap smear came back... I have abnormal cells for the
>first time. Don't know anything more.
>
>Please tell me what I should do next... what I should ask.
>I'm so lost. I can't believe I got both HPV and HSV-2 from
>one encounter. I am just so broken.

Wow. HPV and HSV-2 in just one encounter. However, herpes is a virus that can remain dormant and not show any symptoms for a while. You could have gotten herpes at a much earlier time and just now been diagnosed with it. This site here - http://naturalherpessolutions.com can help you with dealing with herpes and treatments.


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