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Subject: "Basic Chronic Pain Resources"     Previous Topic | Next Topic
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Conferences Neuralgia / Pain Topic #18
Reading Topic #18
howladmin
Charter Member
4139 posts
Jul-28-05, 05:11 PM (CST)
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"Basic Chronic Pain Resources"
 
   LAST EDITED ON Oct-07-07 AT 03:23 PM (CST)
 
No matter what is causing the pain you can treat the symptoms. Many people with chronic pain don't realize that untreated pain alone can cause changes in your nerves and brain that worsen the pain. Just treating the symptoms of pain can reduce or prevent some of the permanent changes chronic pain can cause. Hopefully you all have doctors that are willing to treat pain even if they argue about what the cause is.

Here is a 2000 article on the approach to treating chronic pain. Nice flow charts.

There are a bunch of pharmaceutical options to look into and talk to your doctors about.

1) Topical anesthetics like 5% lidocaine gel, lidocaine patch or nerve blocks
2) Capsacian Cream The FDA appoved Axsain for OTC sale. There are also patches available.
3) Non steriodal anti-inflammatories (Advil, Tylenol etc)
4) Tricyclic antidepressants (Elavil). You take a lower dose than the antidepressant dose and it chages how pain is perceived.
5) Gabapentin AKA Neurontin
6) Opiods (Codeine, Vicodan) These are usually non addictive when used in people with chronic pain. Don't be afraid of them.
7) Tramadol AKA Ultram

Here's a link to database of pain management clinics in not only the US, but in Canada as well as other International locations. (Thanks to Muffin!)

Aren't sure how to talk to your doctor about pain? Maybe some of these suggestions will be helpful.

There are also several chronic pain support groups where people can empathize with your pain in a way we might not be able to. Here's one

Cognitive Behavioral Therapy has been used to help people cope better with chronic pain so they have better function and an improved quality of life. Read more about it here

Will update this as I can.

Howl


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  Subject     Author     Message Date     ID  
  RE: Basic Chronic Pain Resources Dancermom Jul-28-05 1
     RE: Basic Chronic Pain Resources howladmin Jul-28-05 2
         RE: Basic Chronic Pain Resources Dancermom Jul-28-05 3
             RE: Basic Chronic Pain Resources graceadmin Jul-29-05 4
                 Vulvodynia/Vulvar Vestibulitis sites Amanda Apr-02-08 8
  RE: Basic Chronic Pain Resources Sheba's Mom Jul-29-05 5
     RE: Basic Chronic Pain Resources Sheba's Mom Aug-19-05 6
  RE: Basic Chronic Pain Resources Amanda Feb-10-06 7
  Acupuncture Amanda Apr-02-08 9
  RE: Basic Chronic Pain Resources shebas_mom May-12-10 10
  RE: Basic Chronic Pain Resources Ianpeterson Jun-09-10 11

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Dancermom
Guest
Jul-28-05, 05:18 PM (CST)
 
1. "RE: Basic Chronic Pain Resources"
In response to message #0
 
   Howl! Thanks so much for all of that information. I am contemplating whether or not I should go on an anti-depressant for the pain...or if I should just continue to pop a gazillion ibuprofen each day...(lol)...or if I should just tough it out and deal with it. I'm afraid of taking too many Advil in one day however...what do you think would be the maximum number one could take per day? I used to take Lexapro for depression after my divorce (liked it quite a bit)...but from what I read that isn't a tricyclic anti-depressant...so I'm kind of scared to take Elavil. I also just don't want to get hooked on more perscription drugs...but at the same time don't want to have pain either. I think it's weird that my pain went away for about a week...then returned with a fury when my period started last weekend. Is that normal for PHN?


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howladmin
Charter Member
4139 posts
Jul-28-05, 05:50 PM (CST)
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2. "RE: Basic Chronic Pain Resources"
In response to message #1
 
   LAST EDITED ON Jul-28-05 AT 05:53 PM (CDST)
 
Hi Dancermom,

I don't take more ibuprofen than the bottle recommends. Docs will sometimes prescribe 1000mg every 6 hours, but thats for a set time period to help an acute problem. High dose NSAIDs taken long term can cause stomach ulcers. Some people who drink and take high dose NSAIDs have damaged their livers or kidneys. I treat them with respect.

I definitely wouldn't tough out the pain. The best way to treat pain with the lowest doses of drug is to stay ahead of it. Once pain gets rolling you have to use a lot more drug to get a lesser effect. I can understand being nervous about taking pain medication. Many people are nervous about opiods. Honestly, if you really have chronic pain you won't become psycologically addicted though you might be dependent on the drug for pain relief. Some people are concerned about the anti-depressants too. What makes it harder is that none of the pain drugs work for everyone. You might have to try 2-3 things before you find what works. It can be a long process. Why not make an appointment with a doctor who has an interest in treating pain? They actually don't push drugs down your throat.

What we "know" about PHN we know from the experience of people with shingles. Their pain is constant because the nerves have been damaged. We don't know much about neuralgia associated with herpes at this point. I'm guessing its similar but I don't know anything for certain. The fact that it totally went away doesn't really fit with what we know about PHN from shingles. Is it worth looking into things that might be contributing to your pain?


Howl


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Dancermom
Guest
Jul-28-05, 09:03 PM (CST)
 
3. "RE: Basic Chronic Pain Resources"
In response to message #2
 
   Thanks Howl. I suppose I should make an appointment to see the doctor. I was planning on just seeing my regular doctor (not my gyn). Although, I'm never sick...so I don't hardly know this doctor...because I never go to him. If I did decide to go to a doctor that specializes in pain...how would I go about finding one?

I probably do need to cut back on the Ibuprofen ...especially since I drink alcohol (sometimes just to help kill the pain...lol).

I got chickenpox when my daughter was in kindergarten (about 7 years ago)...but I don't think my pain could possibly be caused by shingles...since I've never had shingles. So...this is either caused by HSV-1...or something else. Do other people that post on this forum have the pain go away for a few days then return? I'm not sure I remember anyone stating that...but perhaps many do have it go away for a period of time?


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graceadmin
Charter Member
13334 posts
Jul-29-05, 05:15 PM (CST)
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4. "RE: Basic Chronic Pain Resources"
In response to message #3
 
Look and see if there is a vulvodynia specialist near you dancermom. That would be the best person to see for any type of ongoing genital pain. Some gyn doc's are better at genital pain than others. I see a urogynecologist myself and he's pretty good about pain issues down yonder.

grace

The first step in stopping the perceived stigma about genital herpes - is to stop believing in it yourself


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Amanda
Charter Member
722 posts
Apr-02-08, 10:13 AM (CST)
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8. "Vulvodynia/Vulvar Vestibulitis sites"
In response to message #4
 
   www.vulvodyniasupport.com

http://grouups.yahoo.com/group/vulvodynia_vulvarpain

"Pray for the dead and fight like hell for the living."
-Mary Harris "Mother" Jones


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Sheba's Mom
Guest
Jul-29-05, 10:19 PM (CST)
 
5. "RE: Basic Chronic Pain Resources"
In response to message #0
 
   Hi Howl,
I checked the pain management clinic references and I can add information on one that is listed there. It is listed as Santa Teresita Pain Clinic in Duarte, CA. The address is correct, but the name is actually Advanced Pain Institute. They did not give a phone m=number, but I can provide it along with Doctor's name & e-mail addy.

I. Michael MineHart, M.D.
931 Buena Vista St., Suite 303
Duarte, CA 91010
626/932-3499
800/724-6585
Fax 626/932-3469
api303@earthlink.net

This is where I am going for the clinical trial. I don't know if they are accepting any new participants, but it couldn't hurt to ask.
I hope this informatiion will help someone else. They are doing two kinds of trial. One is neurontin, large time released doses and the one that I am doing, the capsaicin patch. I found out today that I most likely got the strong patch because it is still working & other patients have stated that it has worn off for them. I am so blessed! I go back for another re-check in one month.
God bless you!
Sheba


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Sheba's Mom
Guest
Aug-19-05, 00:17 AM (CST)
 
6. "RE: Basic Chronic Pain Resources"
In response to message #5
 
   I have an update on the Advanced Pain Clinic's clinical trial. The trial will be accepting new patients for both the Neurontin time released tablets and the Capsaicin Patch (the one I am involved it) until December of this year.
The last visit I had was last week and I am still relatively pain-free! Whoopeee!!! I had a bit more pain today, but that is to be expected occasionally. I was told that I am doing much better than many of the trial volunteers in the patch trial. It suggests that I received the higher dose. The trial should be complete next Spring and the patch will be available next fall. Since it is a temporary treatment, I know that the relief I have now will be gone within 4 more months or less. I pray for quick approval by the FDA. Others should be able to have relief, too.
I was also told that the patients involved in the Neurontin study are nearly all having success with some mild side effects. The one I was told about was some dizziness.
As I have said before, if ANYONE has any questions that I can answer, please don't hesitate to ask. PHN is a horrible thing to live with and sharing knowledge really helps. I check here every couple of days, so will answer rather quickly.
God bless you!
Sheba


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Amanda
Guest
Feb-10-06, 01:13 PM (CST)
 
7. "RE: Basic Chronic Pain Resources"
In response to message #0
 
   This is a great list, but I would warn against Neurontin. I was prescribed it and it did not help at all. I've since learned that it's been overprescribed because the pharma co. & reps were pushing doctors to prescribe it, and there are some Neurontin lawsuits now because it has some bad side effects.


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Amanda
Charter Member
722 posts
Apr-02-08, 10:14 AM (CST)
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9. "Acupuncture"
In response to message #0
 
   I just wanted to put in a plug for acupuncture. I have been seeing an acupuncturist here in Houston who specializes in women's problems. It is actually helping!

"Pray for the dead and fight like hell for the living."
-Mary Harris "Mother" Jones


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shebas_mom
Member since May-12-10
5 posts
May-12-10, 05:45 PM (CST)
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10. "RE: Basic Chronic Pain Resources"
In response to message #0
 
   Hi all. It has been years since I was here, but I have not forgotten the loving support I received here. Howl invited me here from another pain site because, though my PHN is a bit different from other herpes, the pain is similar. I just learned that the trans-dermal patch that I was in clinical trial for 5 years ago has, at long last, been released. I am typing through tears of joy! The clinical trial was 5 years ago, and it was the only time in 6 years that I have been relatively pain free for any length of time. The name of the patch is Qutenza. You can Google it ans see if it would be of help to you. Just know, Qutenza works this way: The site of the pain is mapped and the area is numbed with topical anesthetic for 1 hour. The anesthetic is washed off and the patch is placed on the affected area for one hour. After an hour the patch is removed and I was relatively pain free for 3 months. Only one application is required for effective treatment. The patch is 8% capsaicin, so application on mucus membrane would be dicey. My pain is on my right side around my waist area.

God bless you and thanks for all the support I received here.


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Ianpeterson
Member since Jun-9-10
3 posts
Jun-09-10, 10:13 PM (CST)
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11. "RE: Basic Chronic Pain Resources"
In response to message #0
 
   I think that the expansion of of Internet has became most valuable tool for the world to share the information. It is very isolation when we are in pain, and for the people who have been active whole life, for them also it is quite a adjustment.


Every human being is the author of his own health or disease.


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