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Subject: "Painful urination and ejaculation - anyone else?"     Previous Topic | Next Topic
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Conferences Neuralgia / Pain Topic #267
Reading Topic #267
pinball
Member since Oct-15-07
3 posts
Jan-07-08, 07:03 AM (CST)
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"Painful urination and ejaculation - anyone else?"
 
   I am looking to find out if anyone else out there is experiencing or experienced the same pain that I seem to be having with my PHN.

I am a male that was diagnosed with GHSV1 a year ago. I have not had an outbreak since then but have suffered from burning and stabbing sensations and general uncomfortableness in my groin area from the time that my initial OB symptoms disappeared. However, the biggest discomfort that I have is pain during urination and ejaculation.

I have been on a range of meds (Lyrica etc) which have helped the general groin burn but have had no effect on the urination/ejaculation pain. This is non-stop, every time pain - not just a come and go pain. The levels may vary slightly but it is always there.

All urine and blood tests (3 separate times) have come back fine Ė so no urinary infection or PSA issues.

I have not seen anyone on this forum describe this as an ongoing issue and canít find anything else on the internet that matches these symptoms and after a year of this I have had enough.

It would be appreciated if any males with GHSV1 could recount any similar experiences.


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  Subject     Author     Message Date     ID  
Painful urination and ejaculation - anyone else? [View All] pinball Jan-07-08 TOP
  RE: Painful urination and ejaculation - anyone else? auntiejessiadmin Jan-07-08 1
  RE: Painful urination and ejaculation - anyone else? pasm55 Jan-07-08 2
     RE: Painful urination and ejaculation - anyone else? fc1 Feb-20-08 3
         RE: Painful urination and ejaculation - anyone else? pasm55 Feb-21-08 4
  RE: Painful urination and ejaculation - anyone else? ntdc May-31-09 5
     RE: Painful urination and ejaculation - anyone else? Scooter Jun-06-09 6
         RE: Painful urination and ejaculation - anyone else? lilybrooke Jun-07-09 7
             RE: Painful urination and ejaculation - anyone else? Scooter Jun-07-09 8
                 RE: Painful urination and ejaculation - anyone else? Scooter Jun-07-09 9
  RE: Painful urination and ejaculation - anyone else? herpesforlife Sep-10-09 10
     RE: Painful urination and ejaculation - anyone else? herpesforlife Sep-10-09 11
         RE: Painful urination and ejaculation - anyone else? Scooter Sep-26-09 12
  RE: Painful urination and ejaculation - anyone else? daviwolf11 Nov-13-10 13
     Antiviral meds Rajahadmin Nov-15-10 14

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auntiejessiadmin
Member since May-14-05
18073 posts
Jan-07-08, 09:58 AM (CST)
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1. "RE: Painful urination and ejaculation - anyone else?"
In response to message #0
 
I'm not male, but have you actually had a prostate exam? The PSA is a good test, but you still should have the exam.

We had a member here a couple of years ago who had similiar feelings, and it turned out he had an anal fissure (small tear in his rectum) that was causing it.

I'm not saying that your pain isn't being cause by herpes, but you'll want to at least rule the other things out.

Jess

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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pasm55
Member since Sep-22-07
570 posts
Jan-07-08, 03:19 PM (CST)
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2. "RE: Painful urination and ejaculation - anyone else?"
In response to message #0
 
   Pinball- I haven't heard from you in some time - I was hoping the lidocaine drip, the lyrica and all the supplements your doctor had put you on had massively helped. It sounds like no such luck. I will be watching to see if some males with the same symptoms post. I can tell that you have most certainly "had enough". I don't know if you read any of my recent posts but I am anxiously awaiting my Jan. 16th appointment with the "PHN published doctor". I hope I am not disappointed - what do they call that - cautious optimism? What is that pain like, the urination and ejaculation pain, evidently anything that passes through aggravates the nerve endings? Is it burning, pins and needles, stabbing, spasming, electrical jolts? What is it? I am trying to see if your description matches any of my pains including the vulvodynia. Does it travel, shoot, stay in one place, what is the origin? I can't imagine this pain. You can't quit urinating - dang..........you must dread peeing and sex. That so sucks. You know for almost an entire year, the first year, my breath passing over my lips would ignite pain that would make me shake. I HOPE THIS GOES AWAY REALLY SOON FOR YOU.

Pasm


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fc1
Member since Mar-12-06
21 posts
Feb-20-08, 08:19 PM (CST)
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3. "RE: Painful urination and ejaculation - anyone else?"
In response to message #2
 
   See 20 Feb 08 post from fc1. Sounds like we are on the same page.


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pasm55
Member since Sep-22-07
570 posts
Feb-21-08, 08:10 PM (CST)
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4. "RE: Painful urination and ejaculation - anyone else?"
In response to message #3
 
   I am currently doubling up on my valtrex, 500 mg twice a day, for five days now. I am in a huge ob right now, genital and butt crack area (I can't believe I just said butt crack) and it started about three days into the double valtrex. I swear the valtrex caused it. If I get worse, then I am going back to once a day valtrex. Grrrr. I take 125 mg of lyrica a night and have started my trileptal, 300 mg at night. The goal is to get up to 1200 mg trileptal per day. I have a friend I made on a chronic pain forum from Canada, HSV1 PHN. Anyway, she has been on a long list of meds so I emailed her for support since I am always afraid to go on meds and what do you think? She tells me she is off of all her meds, can't take the pain but her liver and kidneys are showing stress from all the meds. She is reading stuff to help her through these dark times without taking meds. So she still encouraged me and I have not yet flushed my meds down the toilet so.........wish me luck. I will let you all know.

Pasm


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ntdc
Member since May-28-09
130 posts
May-31-09, 11:50 PM (CST)
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5. "RE: Painful urination and ejaculation - anyone else?"
In response to message #0
 
   Painful ejaculation is a hallmark of 2 semi-related conditions. Chronic prostatitis and urethral strictures. Go see a urologist get your prostate poked.

prostatitis can be sometimes cured with a month course of antibiotics (cipro or zithromax). The cause of most cases of prostatitis is not generally known.

If you have a history of kidney stones or received some injury to the penis (even minor one like having a lap dance at a topless club) you may have urethral strictures this is like scarring inside the urethra. Doctor can check for this with a cytoscopy but its generally a last resort as cytoscopy can CAUSE strictures in some people. These strictures can collect bacteria or mycoplasma which causes inflamation of the prostate and/or urethra. If you told your doctor painful ejaculation alarm bells should have gone off for him. If you can go see a urologist asap.


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Scooter
Member since Sep-27-08
500 posts
Jun-06-09, 09:59 PM (CST)
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6. "RE: Painful urination and ejaculation - anyone else?"
In response to message #5
 
There was a woman who posted on here that had the same problem. She was in severe urinary pain. She ended up taking 2 valtrex a day something like that and it was manageable. I assume you are on antivirals? I get the same thing when my H is more intense not severe pain but I feel the need to pee more often.


Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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lilybrooke
Member since Aug-30-08
408 posts
Jun-07-09, 11:57 AM (CST)
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7. "RE: Painful urination and ejaculation - anyone else?"
In response to message #6
 
   Same here, although a few times peeing caused my clitoris to feel like it was mangled in a zipper or in a meat grinder. I also can't fully void as well and it sometimes takes me minutes to finish urinating. Same problems with pooping. H has really screwed with my bowels. Pretty rare but I found a post from a gal called J who said she has not had a normal bm since contracting h. That was actually one of my first symptoms even before the neuralgia. I don't know how far out she was at that point but I'm coming up on year 5 with h and still no answers or solutions to my problems. Scooter, any digestive problems from h with you?


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Scooter
Member since Sep-27-08
500 posts
Jun-07-09, 03:11 PM (CST)
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8. "RE: Painful urination and ejaculation - anyone else?"
In response to message #7
 
Sometimes I don't feel like I articulate my symptoms well so I found this on the net which sums it up. My itching can start at my rectum an/or labia area and run up around the top of my clitoris. And sometimes in the pubic hair area. This itching can change to a distracting nerve pain or burning. More so when I'm stressed or trying to go off the antivirals. Of course the more intense the irritation the more of a need I feel to urinate. Interestingly sex in not painful and still feels very enjoyable.

No, this virus does not affect my bowel at all. I do have IBS and was diagnosed 12 yrs ago. I do like my coffee and a cocktail sometimes in the evening or with friends. When I crank up my coffee and expresso intake I really suffer. As H is a nerve disease this makes sense to me.

"Itch is an uncomfortable sensation caused by irritation of particular nerve endings in the skin. Nerve fibers have special endings that are tiny organs able to receive messages. Some nerve endings receive pressure sensations, some receive temperature, and some receive pain. Stimulation of pain nerves in the skin sometimes results in itching.

Itching is a symptom and not a disease. Most commonly it is a symptom of skin diseases. Many different causes may produce itching. A common cause is some chemical that touches the skin and irritates it. An allergy may release chemicals that make the skin swell and itch."

Also this is interesting:

The general medical term for itching is pruritus (proor EYE tuss). There are all kinds of pruritus; the kind we're talking about here is called punctate pruritus, spot itching not triggered by any obvious skin disease or other cause.

The operation of the nerve endings in the skin is not clearly understood, but itching appears to be associated with the sense of pain, since persons who can no longer feel pain, for whatever reason, usually don't itch anymore either. In this respect itching is analogous to tickling, which is thought to be related to the sense of pressure.

There are numerous "itch points" scattered about the surface of the body where it's possible to induce itching simply by touching with a fine metal wire. Other areas on the skin usually are relatively insensitive. Itch points appear to be associated with concentrations of fine free nerve endings.

It's known that in some cases the nervous system has different mechanisms for conducting sensory impressions of varying intensity, such as light and firm pressure, and there is speculation that itching may be a watered-down sense of pain, designed to detect extremely faint stimuli. Thus if you have dry skin or a stretched hair follicle or some minor localized chemical imbalance, the nerves may multiply it into the sharp irritation that you instinctively scratch.

Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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Scooter
Member since Sep-27-08
500 posts
Jun-07-09, 08:23 PM (CST)
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9. "RE: Painful urination and ejaculation - anyone else?"
In response to message #8
 
Pinball I wanted say I really hope that a doctor can help you and find a solution. I'm so sorry you are having this pain when sex is supposed to be enjoyable. As a female I do try and drink a lot of water and hope you are doing the same. Have you ever tried uristat? I'm sure the urologist can point you in the right direction. Do try antivirals if you are not on them.


From my post above it mentions "sensory impressions of varying intensity" this appears to be accurate. What works foe me is getting clothes off the area or wearing loose clothes, ie, no underwear, etc. Friday it was mostly a burning day (labia area) and in the am I tried a baby wipe. That didn't work so in the afternoon, really wanting a break from the burning, I tried a Tucks pad in the afternoon. I got 2 hrs of relief so that was worth it.

I find it interesting that application of something to those nerve endings will help. I do look forward to coming home after work and getting the pressure off that area, ie clothes, I know I will feel better. Yeah it does put a damper on my social life when I would rather come home and take my clothes off to get out of pain, instead of meeting friends for dinner or going on a date.

This is an everyday thing. I rarely escape this nerve irritation. I get to feel normal for maybe a few hours a day. Yep, sometimes life can suck '-)


Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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herpesforlife
Member since Aug-27-09
2 posts
Sep-10-09, 02:12 PM (CST)
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10. "RE: Painful urination and ejaculation - anyone else?"
In response to message #0
 
   Pinball, finally there is someone out there (sort of) like me.

Have had GHSV1 for almost two years (though only RECENTLY) found out it wasn't GHSV2...more on that later.

I am currently experiencing activity, "ants biting", discomfort morning, most of the day, and night....for almost two years. :(

Caffeine, stress, sex in general seems to aggravate my groin area. It of course has messed with my life in terrible ways, affecting my mood, increasing depression, and affecting my marriage.

I've recently moved to NYC, and been tested at the Montefiore Clinic in the Bronx....the best place I've been to. They actually listened and cared, hence the discovery of the misdiagnosis.

I am about to go on antidepressants, but I have tried everything...but am slowly relying on the process of elimination. My next few visits are going to be: bio-feedback, psychiatric help, and a urologist. The mention of PROSTATITIS and URETHRA stricturis is interesting....

...but most of the Drs say what we're feeling is not Herpes....I am still skeptical and desparately am afraid I will feel this helpless the rest of my life.

Anyone else (especially males) please lend your help...

...more soon


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herpesforlife
Member since Aug-27-09
2 posts
Sep-10-09, 02:15 PM (CST)
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11. "RE: Painful urination and ejaculation - anyone else?"
In response to message #10
 
   PS....

...check out the current Scientific Mind issue....there's a few articles on chronic pain (in general, not herpes)....but some interesting stuff....


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Scooter
Member since Sep-27-08
500 posts
Sep-26-09, 09:48 PM (CST)
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12. "RE: Painful urination and ejaculation - anyone else?"
In response to message #11
 
I am female and have been in the same boast. My 2yr H anniversary is Oct of this year. Stay in touch with me and let me know what you find out please - I would really be grateful. I SO KNOW how much your life changed! I'm sorry for the hardship it has put on your marriage and hope you find some answers.

Check out A Headache in the Pelvis by Davis Wise and Rodney Anderson. They may be onto something.


Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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daviwolf11
Member since Nov-13-10
1 posts
Nov-13-10, 10:20 AM (CST)
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13. "RE: Painful urination and ejaculation - anyone else?"
In response to message #0
 
  
i have been diagnosed GHSV1 more than 15 years ago and ever since i have been trying to find out what exactly triggers recurrecnces and how to treat them. At the beginning i suffered from typical outbreaks mostly around the fore skinn of the penis. but that happens very seldom these days. most of the time i get the blisters on my lower back , on the right side next to the spine. what definitly triggers an outbreak is sexual stimulation and ejaculation. first symtoms are prostatitis and frequent urination mainly during the night. I found that the application of Volataren Emulgen on the Prostat gland helps a lot to relieve the pain within a short while. i get prickling feeling litterally everywhere, arms ,legs back,feet. not all at a time but kind of moving around. In severe cases i get abdominal pains and also migrane like headache pains and a terrible tierness. I used to take Zovirax but it's very expensive and i am not convinced it really helps me. i tried Homeopathie and was without recurrences over longer periods of time. Unfortunately the doctor wouldn't tell me which medication he used. He experimented with different once some seemed better than others. I stopped the treatment bcse he refused to give me a clear descriotion of the substances he used. however we positively identified beef and possibly also coffee if taken regularly as a cause of recurrence. Beef sounds strange but I had more than one experience where people served beef and people didn't tell be that they served food which contained beef. when i sufferd an outbreak a day later and called to ask whether there possibly was some beef in the food the confession like answer was always, yes but very little we didn't expect you would notice it. So beef for me is a no go since many years. The illness is depressing and has affected my marriage and sex life a lot. Everytime I have sex the "punishment" follows swiftly and the fear of it takes all the pleasure away.
In conclusion I can say that the probability of a recurrence is very high at any time of severe stress (even if it is unconsciously).
Yoga, Meditation and a non stressful lifestyle will probably help to improve the illness. Does anyone have good advise other than becoming a monk (lol) or knows any medication which can help. i am convinced there is a cure for everything but the pharma industry is not interested to erradicate GHSV1 ,it's big money to supply millions of suffering people over a lifetime with drugs.


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Rajahadmin
Charter Member
15365 posts
Nov-15-10, 09:52 AM (CST)
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14. "Antiviral meds"
In response to message #13
 
You mentioned Zovirax and it being expensive. Zovirax is the brand name for acyclovir which is not available as a generic and very inexpensive. You might also consider suppressive valtrex or famciclovir. If zovirax/acyclovir didn't work, I'd check the dose that was prescribed. We often see doctors prescribing too low a dose.

"Do the Right Thing. It will gratify some people and astound the rest." - Paraphrased from Mark Twain


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