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Subject: "What has worked for your PHN?"     Previous Topic | Next Topic
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Conferences Neuralgia / Pain Topic #301
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auntiejessiadmin
Member since May-14-05
18073 posts
Jul-27-08, 07:31 PM (CST)
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"What has worked for your PHN?"
 
LAST EDITED ON Jul-27-08 AT 07:35 PM (CST)
 
This is a place where you can report what's worked for you, and you can see what has worked for others.

Please remember that nothing in this thread can be construed as medical advice, and in no way should replace consultation with your own medical providers.

Its also an anchored post, so you won't need to keep bumping it up.

If you have a specific question about your symptoms, pain, herpes, etc., please start your own thread. This thread is ONLY for relief from PHN.

Ask, and you shall receive.

Aj

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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  Subject     Author     Message Date     ID  
  RE: What has worked for your PHN? silver lining Aug-16-08 1
  RE: What has worked for your PHN? emerald Aug-25-08 2
     RE: What has worked for your PHN? Libbys1mom Aug-19-09 7
  RE: What has worked for your PHN? lilybrooke Aug-31-08 3
     RE: What has worked for your PHN? emerald Sep-01-08 4
         RE: What has worked for your PHN? lilybrooke Sep-01-08 5
  RE: What has worked for your PHN? JG440 Jul-15-09 6
  RE: What has worked for your PHN? shebas_mom May-12-10 8
     RE: What has worked for your PHN? TheOriginalScooter Jul-29-11 9
         RE: What has worked for your PHN? Loveable Oct-31-12 10

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silver lining
Member since Aug-19-08
927 posts
Aug-16-08, 10:09 AM (CST)
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1. "RE: What has worked for your PHN?"
In response to message #0
 
   Anyone gonna post?

http://loveinthetimeofherpes.blogspot.com/


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emerald
Charter Member
Aug-25-08, 00:01 AM (CST)
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2. "RE: What has worked for your PHN?"
In response to message #0
 
   I would love to know what has worked for others. Currently I am on Neurontin and sometimes I think it is helping a little, but not enough. I am searching for another medication that will work better. Has anyone tried Cymbalta for pain relief? That is the next medication that I am considering trying.

Thanks


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Libbys1mom
Member since Aug-19-09
16 posts
Aug-19-09, 07:26 PM (CST)
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7. "RE: What has worked for your PHN?"
In response to message #2
 
   May I ask what PHN is? I am new to the board, not new to herpes and the pain that comes with it.
Thank you...


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lilybrooke
Member since Aug-30-08
408 posts
Aug-31-08, 04:15 PM (CST)
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3. "RE: What has worked for your PHN?"
In response to message #0
 
   Epsom salt baths (1 1/2 c. per bath) used to dull the pain a bit for me (only when I was in them, and for a short time afterwards, probably due to soporific effect). However, I develop loose stools/diarrhea from them, plus they stopped working. I'm very sensitive to magnesium (I can't even take it for my atypical migraine, and magnesium is very good for migraineurs).

If one is going to try antidepressants, generally the older, time-tested ones are better and you should try them first: tricyclics (Elavil, Pamelor the most often used). I have had experience with all the neuro drugs for migraine way preceding my ghsv2.


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emerald
Charter Member
Sep-01-08, 03:19 PM (CST)
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4. "RE: What has worked for your PHN?"
In response to message #3
 
   Do you feel that Elavil is better fro PHN than Cymbalta? Have you tried them both? I am considering trying one of these next.

Thanks


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lilybrooke
Member since Aug-30-08
408 posts
Sep-01-08, 05:26 PM (CST)
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5. "RE: What has worked for your PHN?"
In response to message #4
 
   I have not used Cymbalta. Is it an AD (and if so, which type?) or is it a pain med? Or an AD specifically targeting pain? I say try the older ones first because they have stood the test of time. I have spoken to doctors who suggested Elavil first. Pamelor is closely related to Elavil with less sides if you are prone to them. I know at least one lady who said Elavil helped at a very low dose of 10mg (which is almost nothing). I used all these (and other drugs) for atypial migraine but I will not take them again unless I have to...too many cognitive and other sides. Good luck.


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JG440
Member since Jul-15-09
100 posts
Jul-15-09, 09:15 AM (CST)
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6. "RE: What has worked for your PHN?"
In response to message #0
 
   Continuous anti-viral meds on a daily basis has helped me. It takes a little while (about a month to kick in), but then it gets pretty good after that. I actually think....remember I am not a doctor that PHN can be caused by constant irritation to nerves in that area by the herpes virus. And if you do not quickly take anti-viral meds at the time of an outbreak then you risk the chance of herpes causing damage to one of your nerves. Yes, this is very unlikely to occur after your first few outbreaks, but you increase your odds as time goes on without proper treatment. This occurred for me, because I did not know I had HSV-2. I now know that I showed symptoms for about a year, but thought my skin was only irritated, because it would heal after two to three weeks. Anyway, because I would just deal with the outbreaks and not take any treatment, then it finally did enought damage to one of my nerves and I have had continous pain (like an itchy,burning and pain feeling for the last six months.) It only calms down when I am on valtrex. Hopefully this information is helpful.


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shebas_mom
Member since May-12-10
5 posts
May-12-10, 08:22 PM (CST)
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8. "RE: What has worked for your PHN?"
In response to message #0
 
   Hi all. It has been years since I was here, but I have not forgotten the loving support I received here. Howl invited me here from another pain site because, though my PHN is a bit different from other herpes, the pain is similar. I just learned that the trans-dermal patch that I was in clinical trial for 5 years ago has, at long last, been released. I am typing through tears of joy! The clinical trial was 5 years ago, and it was the only time in 6 years that I have been relatively pain free for any length of time. The name of the patch is Qutenza. You can Google it ans see if it would be of help to you. Just know, Qutenza works this way: The site of the pain is mapped and the area is numbed with topical anesthetic for 1 hour. The anesthetic is washed off and the patch is placed on the affected area for one hour. After an hour the patch is removed and I was relatively pain free for 3 months. Only one application is required for effective treatment. The patch is 8% capsaicin, so application on mucus membrane would be dicey. My pain is on my right side around my waist area.

God bless you and thanks for all the support I received here.


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TheOriginalScooter
Member since Aug-29-10
25 posts
Jul-29-11, 00:55 AM (CST)
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9. "RE: What has worked for your PHN?"
In response to message #8
 
   Time and valtrex. I had pretty much constant phn for the first 3 yrs with repeated outbreaks while on daily suppressive antivirals either valtrex or famvir. This last time, in Oct of 2010, I switched back to valtrex and I finally started getting a break. I had about 4-5 months of a good streak and then started having allergies and outbreaks in April. After a few months the outbreaks calmed down. I noticed with each outbreak this last time around the phn ramped up. I also notice that I do better on valtrex but it doesn't stop the outbreaks all together. I believe the research article Herpes Never Sleeps explained it well, if the virus is always shedding or active, the viral medication has a hard time keeping up. From my "physical experience" with this virus the article appears to be accurate. Oct 2011 will be my 4 year anniversary. After undergoing extensive medical testing no other health conditions were identified.


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Loveable
Member since Oct-31-12
1 posts
Oct-31-12, 12:35 PM (CST)
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10. "RE: What has worked for your PHN?"
In response to message #9
 
   Hi I'm new here and have H2 and suffer from phn. What has been helping me is rubbing cassia oil on my bum and legs. Its an essential oil so mix it with a carrier oil. I've had this for 2 years and 1 month now and just got on generic valtrex last month. I wanted to make my body control the outbreaks. BIG MISTAKE. I wish I would've started anti virals sooner cause I still have phn. Its not as bad as it was but its still there.


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