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Subject: "HSV-2 & PHN...Help!!!!"     Previous Topic | Next Topic
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Conferences Neuralgia / Pain Topic #368
Reading Topic #368
JG440
Member since Jul-15-09
100 posts
Jul-15-09, 08:01 AM (CST)
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"HSV-2 & PHN...Help!!!!"
 
   Please tell me someone knows what I am describing. Was diagnosed with HSV-2 earlier this year. Did not know I had it. Now realized I was showing symptoms for about 1 year prior to my diagnosis, so I did have outbreaks, but thought my skin was irritated by my lotions or different soaps. Anyway, ever since my last outbreak (a few months ago), I have had a continuous itching, burning and pain feeling in the vaginal area.The outbreaks have gone away but the pain has continued. I began to take valtrex (500 mga day) and noticed some improvement after the first month, but the pain still comes and goes.Sometimes it gets really really bad. Is this possible? The continuous pain? I have been checked for everything else and only tested positive for HSV-2. Has anyone else ever dealt with anything like this? Is HSV-2 causing PHN? Is this common? How long does this typically last?


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  Subject     Author     Message Date     ID  
  RE: HSV-2 & PHN...Help!!!! Lenoreadmin Jul-15-09 1
     RE: HSV-2 & PHN...Help!!!! JG440 Jul-15-09 2
         RE: HSV-2 & PHN...Help!!!! Scooter Jul-16-09 3
             RE: HSV-2 & PHN...Help!!!! JG440 Jul-17-09 4
                 RE: HSV-2 & PHN...Help!!!! JG440 Jul-17-09 5
                     RE: HSV-2 & PHN...Help!!!! Scooter Jul-17-09 6
                         RE: HSV-2 & PHN...Help!!!! JG440 Jul-19-09 7
  RE: HSV-2 & PHN...Help!!!! Jacksparrow Apr-25-11 8

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Lenoreadmin
Member since Oct-22-04
4277 posts
Jul-15-09, 04:47 PM (CST)
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1. "RE: HSV-2 & PHN...Help!!!!"
In response to message #0
 
   When you say that you were tested for everything, do you just mean STDs or were you also tested for yeast and BV? If not, it's probably a good idea to get tested to rule out more common reasons for constant pain and itching.

Some people do have chronic nerve pain from herpes, but it isn't as common as BV. What is your doctor telling you?


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JG440
Member since Jul-15-09
100 posts
Jul-15-09, 05:55 PM (CST)
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2. "RE: HSV-2 & PHN...Help!!!!"
In response to message #1
 
   I was tested for STD's and had a culture for yeast and BV completed by three different doctors. The results were negative for all except HSV-2. The final doctor I have visited has come to the conclusion that I may be suffering from vulvodynia (pain in the vagina) and this was caused by postherpetic neuralgia. I guess this came about from frequent outbreaks left untreated, so maybe a nerve is damaged or inflamed. Have you heard of anything like this? I know you stated that herpes can sometimes give chronic pain. Could you explain a little bit more to me about that? How do people treat it it? I noticed that daily valtrex seems to calm the pain, itching and burning down there. However, there are times when it still comes and goes for a few minutes throughout the day.


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Scooter
Member since Sep-27-08
500 posts
Jul-16-09, 10:33 PM (CST)
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3. "RE: HSV-2 & PHN...Help!!!!"
In response to message #2
 
JG440 all of your questions have been asked before either by me or someone else. I would take your time and read thru the archives/threads on this website.

I have what you describe everyday and it seems to ebb and flow with my circadian rhythms. When I get off work and get my clothes off and my adrenaline comes down the irritation gets better. Check out the technical forum I have a long post on there with a specialist on med help. In their opinion this level of viral activity - at least that what it feels like to me - is not related to herpes. I feel like it is.

There are no definitive answers. The more I can let go and just deal with it the better off I am emotionally. I would suspect that it will get better with time. I was diagnosed in Oct 2007. If you focus on it too much you'll become depressed and suicidal. So don't let yourself go there.

Find things that take the edge off - a tucks pad - get your clothes off - a cool shower keep the area clean - take meds - hydrocortizone cream - etc. I like you have spent small fortune on doctors and after several tests - vaginal punch biopsies - etc- no one has an answer.

I can tell you when I discontinue my Famvir my nerve pain kicks up 2-3x. I believe my daily continuos symptoms are related to this disease.

Hang in there and stay strong.


Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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JG440
Member since Jul-15-09
100 posts
Jul-17-09, 09:13 AM (CST)
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4. "RE: HSV-2 & PHN...Help!!!!"
In response to message #3
 
   Scooter,

Thanks for your response and I will take the time today to look through previous threads on PHN. I may have some additional questions for you after I take a look at the threads, so look out for them. Also...I do have one question at this time. Do you remember what may have caused the initial overall burn, itch and pain feeling? I mean was there anything in particular that you were doing at the time or right before this all began. The reason I ask is because I am trying to see if maybe there is a common denominator between us. We both have HSV, so I don't know if there is something we may have done that triggered this continous pain.

I had a few outbreaks (about 5 to 6) before this overall pain began, and I realized that the major pain occurred after receiving oral sex and my boyfriend using his finger down there. All of sudden...really later on that evening the itching began and I first thought it was a yeast infection. I tried different yeast meds and the situation just got worse over time. Eventually...I decided to stop using the meds, because the doctors could not find any yeast. After a while, my symptoms began to decrease over time. The pain, itch and burn is still present and comes and goes when it feels like, but it is not as consistent as it was before. During all this testing and trying different yeast medications is when I found out that I had HSV-2. This is what brought me to Valtrex and my daily usage of it. I have noticed some improvement when I take it on a daily basis and the dreadful pain will return as soon as I stop taking it.

Did you have anything similar that may have triggered off this constant burn, pain and itching sensation? I mean was there anything rough or friction that may have also caused your symptoms. I truly believe that his fingers may have irritated some nerves and that is what caused this craziness. About a week after that incident, I had an outbreak and the pain remained even after that cleared up.

I do believe that talking to other is is so beneficial and can sometimes lead to better answers than some medical advice.

Thanks again for the response. Look forward to hearing your response.


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JG440
Member since Jul-15-09
100 posts
Jul-17-09, 09:18 AM (CST)
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5. "RE: HSV-2 & PHN...Help!!!!"
In response to message #4
 
   From JG440:

My last post before this one was really created for anyone to answer. If you are someone also going through the same as Scooter and I, please feel free to respond. I would definitely appreciate any feedback.


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Scooter
Member since Sep-27-08
500 posts
Jul-17-09, 08:05 PM (CST)
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6. "RE: HSV-2 & PHN...Help!!!!"
In response to message #5
 
There is no one incident that started my pain - it started right after I contracted herpes my pelvic area was just one big area of pain. And you can find more of my story and other peoples stories in the posts and anchored posts at the top of the forums. Also check out the library - read - read -read - educate yourself - and then from your research and your empirical knowledge you can deduce your own opinion and belief about this virus.

This is no one event that causes the virus to act up as you describe. From your post I assume you already had HSV2 by the time you received oral sex and finger stimulation. The human mind is fascinating and thank god that our desire to figure things out has propelled us forward as a species. This same thought process creates our desire to really want to understand and find a "reason" for things that happen.

The one thing you can count on with herpes is there is no formula and it can be unpredictable and unexplainable. Often we try to tie in an incident with symptoms related to herpes. I switched soap this last cycle and thought maybe that's it - maybe now I'll get a break. Well I did for 4 days but it had nothing to do with the soap (it was cycle time). There are some knowns that aggravate H, stress, sex, discontinuing meds.

H, for me, ebbs and flows the symptoms come and go - yesterday it sucked all day - today was better. And yes when I start to decrease my med it feels like the virus starts to replicate. That nerve pain becomes more frequent and more intense. People can go for years feeling great with no H symptoms and then start to have outbreaks. In this respect it is unpredictable.

As far as how H behaves in the body that is more technical and I'm not a good techie. So do read the anchored posts because there you will find the answer. I'm glad the meds work for you for the most part. And for me I should feel lucky as well because when I discontinued then for 2 weeks I had severe labia twitching on both sides and my entire pelvic area ached. I was was miserable and now I get the come labia ache but that is much better.

Do check out med help. I think it's under the gynocological forum - they have a post on itchy labia and they send me updates whenever there is a new post. Don't stop looking for "your" answers. Be open minded to other possibilities as to what may be causing your pain.


For me - it's herpes. Until someone other than the UC Irvine expert, the med help expert, my pa, my gyno, my pain management specialist, the numerous infectious disease specialists, and my neurologist can give me an answer - based on my experience and empirical knowledge - it's herpes related.

Be well and send me an e-mail if I can help further.

Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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JG440
Member since Jul-15-09
100 posts
Jul-19-09, 06:37 PM (CST)
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7. "RE: HSV-2 & PHN...Help!!!!"
In response to message #6
 
   Scooter,

Thanks again for the response. How do I send you a direct e-mail? Is there a link that I can use? As you know I am new to this...so I am still trying to learn how to navigate. I also sent you a response in the forum titled...weird things that have happenend since HSV-2. Please check that out and respond when you get the chance. Thanks Again. For the first time...I really do not feel all alone. It's great to see that others understand what I am going through and can relate.


-JG440


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Jacksparrow
Member since Apr-25-11
17 posts
Apr-25-11, 08:03 AM (CST)
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8. "RE: HSV-2 & PHN...Help!!!!"
In response to message #0
 
   LAST EDITED ON Apr-25-11 AT 10:17 AM (CDST) by windy (admin)
 
Hay,
For sure you mist be having Genital herpes, the symptoms that are been described by you clearly say that you are having genital herpes. so without wasting time go to Doc and get checked.

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