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Subject: "success with pnh : total panic"     Previous Topic | Next Topic
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Conferences Neuralgia / Pain Topic #406
Reading Topic #406
french
Member since Jul-15-11
2 posts
Jul-15-11, 12:31 PM (CST)
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"success with pnh : total panic"
 
   Hello,

I am writing to you as I would like to have a couple of information because I am going depressive ( with strange ideas about life) those days and I do not know what to do.

I was in contact with herpes on my genital area 3/4 month from now ( penis on the glans part) even if I did not have any outbreak. Blood test confirmed it. The result for the moment is that I have red spots/ rash going on and off on my glans for the past 3 months. 1 month from now I began feeling burning/strong pain sensation on the left part of my glans ( very specific place, probably where I was infected) and today I have also pain in my buttocks ( and region around 'anus')that make me incomfortable when sitting. This make me in a constant panic state where I am very stressed and do not know what to do.

I talked of that pain to a neurologist that told me it should be post herpetic neuralgia and that it can takes a couple of of months for my nerves to heal. I gave me Neurontin for the moment and I will meet him back in 1 week. Also HE WAS VERY CLEAR TO ME: "I should just stop panicking about keeping this pain: IT IS very unlikely that I still have it in one year ( there are however particular cases). It is normal for nerves to take time to heal after there were infected."


My question is quite clear: this forum nearly made me suicidal when I see people having pain for years but I guess of course that the other people that healed are now away from this forum and think about something else, I just would like to hear story of people that had pain for a couple of months before it heals . Also what did they do while the pain was still there?


Thank you for helping me calming down (and find sleep this night because already 3 white night)


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Rajahadmin
Charter Member
15328 posts
Jul-15-11, 09:23 PM (CST)
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1. "For the majority of people, ...."
In response to message #0
 
herpes gets better gradually as time passes. Are you taking any antiviral drugs like acyclovir, valtrex or famvir? You might want to take them for a while to calm down your symptoms.

You are right about people getting better eventually and drifting away from coming here.

I hope you get some needed sleep now.

"Do the Right Thing. It will gratify some people and astound the rest." - Paraphrased from Mark Twain


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french
Member since Jul-15-11
2 posts
Jul-16-11, 08:40 AM (CST)
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2. "RE: For the majority of people, ...."
In response to message #1
 
   So many thanks for your answet.... I was completly desperated but your message gave me so much ( i nearly cried)
thank you

For the treatment, they did not give me anything because i have nô OB , the only symptôm i have i a constant rédness on the glans whith a red spot appearing / disappering. After being infected my igg rose to 13.4 . ( quite high I think , hope this does not mean Anything serious)

I think that the fact I am assymptomatic ( or with not common symptoms ) made doctors think I should not take medicine. But I think they forget the pain I currently have. I strongly think I should take anti viral for a while . Do you agree ? What do you think the best anti viral is ? I will then ask my doctor for a prescription ...

Again I am so happy you replied me...

Thank you for that


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Rajahadmin
Charter Member
15328 posts
Jul-16-11, 11:04 AM (CST)
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3. "I'm glad my answer was helpful."
In response to message #2
 
The IgG number is very clearly a positive result, but the actual number doesn't mean much beyond that.

The decision regarding antivirals should be yours to make. They are very safe drugs to use and it's worthwhile to see if they help with your discomfort. Another factor is whether you have an uninfected partner to help protect. Taking antivirals daily decreases risk of transmission by at least 50%. The effectiveness of the 3 antivirals is about the same. Generic acyclovir is the least expensive, but the recommended dose is more often so it's a bit more trouble to remember. Valtrex seems to be the most popular these days, but I use Famvir myself simply because that was what the doctor suggested trying several years ago when it was new.

"Do the Right Thing. It will gratify some people and astound the rest." - Paraphrased from Mark Twain


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