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Subject: "PHN back after 2 year break!"     Previous Topic | Next Topic
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mark101
Member since Mar-10-07
24 posts
Dec-26-11, 09:32 PM (CST)
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"PHN back after 2 year break!"
 
   Hi everyone- I don't want to retell my entire story. If you like, you can go back and look at my past posts. Suffice to say, I have tried everything including Pudendal nerve surgery.

For the past two years, my PHN was mostly gone with occasional flare ups that I believe were viral flare ups. After a week or so, it would go away.

But, it was always mild compared to the 4 years I had it after the initial exposure.

Well, for the past week, it has been back with a vengeance....much like it was those 4 long years. I am very worried. I don't know what I could have done to trigger it and I know that there isn't anything I can take that will make a difference.


This sucks. I have been taking 2000mg of valtrex for the past 3 days in the hopes that it may reduce the amount of "damage" or "agitation" it may cause my nerves.

I am going to also take BHT, Vitamin A, and Lysene.

I am not very hopeful considering my 4 year battle previously. I don't know why it went away(thought it might be the surgery) and I sure don't know why its back.


Just wanted to vent.

Thanks

mark1o1


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TheOriginalScooter
Member since Aug-29-10
30 posts
Jan-04-12, 00:47 AM (CST)
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1. "RE: PHN back after 2 year break!"
In response to message #0
 
   So sorry to hear that Mark I feel for you! I'm having a good week but a few weeks ago, I had some flare up, not really bad though and started to wonder - oh shit - does this mean it's coming back!!

Are you taking valtrex every day or only when you have a flare up? Do you have a lot stress in your life right now? Are you getting plenty of rest? Are you taking anything for anxiety if this causes you a lot of anxiety? Keep me posted and I will keep you in my prayers


Scooter


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mark101
Member since Mar-10-07
24 posts
Jan-06-12, 05:33 PM (CST)
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2. "RE: PHN back after 2 year break!"
In response to message #1
 
   I am taking 2000mg of valtrex now ,but I was not taking any these past 2 years. I am completely confused and scared since I have no idea what brought this on again. When I had it before, it gradually wore me down. It is hard to concentrate on anything and work is just plain hell.

I am sleeping well and I have the same stress as always. I just wish I knew the reason. This is the worst part. How can I make a behavioral change if I don't know the cause.

I have gained a few pounds. But, I don't know why that would matter. Maybe my posture is pinching a nerve? Does drinking alcohol cause it or prolong it?

The problem is that no one knows. I don't know why it went away before or why its back...

Any theories would be appreciated.

Thanks

mark1o1


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TheOriginalScooter
Member since Aug-29-10
30 posts
Jan-13-12, 00:32 AM (CST)
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3. "RE: PHN back after 2 year break!"
In response to message #2
 
   LAST EDITED ON Jan-13-12 AT 08:45 PM (CDST)
 
Hi Mark ~
Your original post was 1/14/2007. On Sept 20, 2008 you underwent pudendal nerve surgery. On 1/2/2009 you reported the phn had improved significantly. You also confirm your HSV2 diagnosis with testing for the antibody at 5+. You're sharing on the pain below your waist was de ja vu for me!

During that time you did have flare ups and the surgery did not work immediately but took some time. I contracted H in Oct of 2007. I had pretty much chronic phn below the waist for 3 years and it started to taper off in the 4th year. I still get symptoms almost everyday. Right now I feel a slight burn but it is faint and doesn't distract me. The noise in my nerves is much more tamped down.

From my experience H feels like a steam locomotive and the more momentum it gets the harder it is to get under control. It also feels like the more my nerves get agitated and the more often they get agitated, the more angry they become and stay angry longer. The insult (the outbreak) may back off but the nerves are still firing. The herpes virus attacks the sensory portion of the nerve.

How about staying on the valtrex? That way you could maintain some control over the replication of the virus?


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sochnedo
Member since Mar-12-15
1 posts
Mar-12-15, 02:42 AM (CST)
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4. "RE: PHN back after 2 year break!"
In response to message #3
 
   Are you taking valtrex every day or only when you have a flare up? Do you have a lot stress in your life right now? Are you getting plenty of rest? Are you taking anything for anxiety if this causes you a lot of anxiety? Keep me posted and I will keep you in my prayers ..???

GuL


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