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Subject: "How would you rate your experience with the medical provider you saw ..."     Previous Topic | Next Topic
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Conferences The Poll Forum Topic #19
Reading Topic #19

POLL: How would you rate your experience with the medical provider you saw when you were initially diagnosed with genital herpes? ( please no specific names of providers )
Posted by grace on Aug-16-08, 08:48 AM CST
Result after a total of 46 votes

It was awful - I wasn't given enough info on herpes ( or was given wrong info ), I didn't receive proper testing - it was pretty much you have herpes now get out and the provider wasn't very sympathetic at all 14 votes, 30% Vote for this choice
could've been better - was diagnosed and given medication but not enough info, no invitation to follow up on it and the provider wasn't as friendly as I needed them to be 15 votes, 32% Vote for this choice
It was ok - I was diagnosed, had proper testing done, was given medication, handed some printed info and told to call if any problems but I just could've used a little more sympathy/support 6 votes, 13% Vote for this choice
It was pretty good actually - my provider did the right testing, gave me medications, talked to me and it overall wasn't bad 5 votes, 10% Vote for this choice
my provider I saw was awesome!! Did everything right and scheduled me for follow up within a few weeks and just really seemed to know what they are doing and were supportive 6 votes, 13% Vote for this choice
Edit this poll | Post message to this poll

  Subject     Author     Message Date     ID  
  Awful. silver lining Aug-16-08 1
     RE: Awful. auntiejessiadmin Aug-16-08 2
         RE: Not Awful. muffinadmin Aug-16-08 3
             RE: Not Awful. pasm55 Aug-16-08 4
  docs lab47 Aug-16-08 5
     RE: docs muffinadmin Aug-16-08 6
     RE: docs C16679admin Aug-16-08 7
     Great experience at the docs kms75 Oct-21-08 13
  doctors. Lenoreadmin Aug-16-08 8
     RE: doctors. graceadmin Aug-18-08 9
  two different experiences toughbreak Aug-21-08 10
     RE: two different experiences Cecile Aug-22-08 11
         RE: two different experiences Scooter Oct-12-08 12
     RE: two different experiences Landlover Nov-24-08 14
         RE: two different experiences missmellow Oct-14-09 15
  could have been better folie Dec-30-09 16
     RE: could have been better Raven00144 Jan-16-10 17
  It was aweful SeasonOfChange Jul-22-10 18
     Oh, dear... Rajahadmin Jul-23-10 19
         RE: Oh, dear... SeasonOfChange Jul-24-10 20

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silver lining
Member since Aug-19-08
927 posts
Aug-16-08, 10:04 AM (CST)
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1. "Awful."
In response to message #0
 
   It was awful - I wasn't given enough info on herpes ( or was given wrong info ), I didn't receive proper testing - it was pretty much you have herpes now get out and the provider wasn't very sympathetic at all - yeah, you could say that.

Initially went to planned parenthood and was told they were a few ingrown hairs and sent home. Doctor (young female) told me she was 99% sure it was not herpes, despite my flu like symptoms and sore groin.

Returned the next day when symptoms worsened and was told it was herpes. I started sobbing and the (different young female) doctor said "I understand why you're crying. If I were you, I would be crying even harder." Niiiiice. I wasn't given a type specific test, and type 1 or 2 was not mentioned. they gave me acyclovir but only about 30 seconds worth of herpes info, which i later realized not all of which was accurate.

That week while waiting for the culture test to be confirmed, I went to another clinic because I was experiencing other weird symptoms, and I wanted a second opinion on the herpes. That (older male)doctor said from a visual exam that it was definitely not herpes, it was dermatitis, and that you can't get herpes only on your pubic area, or if you used a condom for intercourse. His exam also caused me some physical pain... i won't even get into that. He called me out of the blue a week later to see how my culture came back, and was floored when it was positive. At this point I still didn't know about types, and he never mentioned it either. he seemed to think that my case was a total anomoly.

When I returned to planned parenthood months later after doing my own research and realizing I needed/wanted to find out the type, I was told by desk staff that I had type 2. I was surprised and said I had a copy of the test, and it didn't show that. They replied that because it is genital, it is type 2. I disputed this and they let me talk to a doctor. As I waited I heard them talking about me outside the door - "I know that means it's type 2 - I tried to tell her, Doctor, but she insisted." The doctor (older gentleman) told me the same. he said, and i quote, that only 1 in 10,000 genital cases are type 1. he seemed intrigued by the statistics i insited were more accurate, and after having previously claimed he disgnoses herpes all the time, he backtracked and said he usually only deals with pregnant women.

Long story short, he agreed to give me a blood test, but told me to come back to a different planned parenthood location, because the one we were at "frowned upon" blood tests for herpes. (huh?)

When I got my type 1 diagnosis by mail, it was a generic letter which read, immediately after the diagnosis, "please come in at your earliest convenience, as this could affect your fertility." luckily i realized it will not, but i went in because i wanted a copy of the numbers. none of the same people i had dealt with earlier were there, so i couldn't even address their folly. the person who further discussed my diagnosis with me that day, i don't know her title or role, told me that "since it's type 1, it will go up (here she motioned from her waist to her mouth) and just disappear."

http://loveinthetimeofherpes.blogspot.com/


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auntiejessiadmin
Member since May-14-05
18073 posts
Aug-16-08, 10:53 AM (CST)
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2. "RE: Awful."
In response to message #1
 
The only thing my doc did that might have been questionable was he didn't type the culture, and he did an IgM.

Turned out that none of it mattered anyway, because I went in 3 weeks later for something else, and while I was there, he decided to the the blood test again, just because it might save me a trip. None of us thought it would be positive, but it was.

Of course, I also knew it was most likely to be type 2 since my then bf had it.

But I got meds the first day, they fit me in when I called saying I thought it was herpes, etc.

Aj

"In those times you seem to forget, I don't mind reminding you that you are a beautiful soul." ~ Cindy Campo

Paragraphs are beautiful things.

You can google, too.


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muffinadmin
Member since Sep-10-04
6230 posts
Aug-16-08, 11:53 AM (CST)
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3. "RE: Not Awful."
In response to message #2
 
LAST EDITED ON Aug-16-08 AT 11:56 AM (CDT)
 
I didn't vote since my initial diagnosis was over 20 years ago.

I went to an anonymous clinic. The providers were nice enough and very matter of fact about things. The doctor tried to make me feel better by saying "they'll probably be a cure in 10 years". But, I never felt "dirty" because of their treatment.

Got visual diagnosis and a script for Zovirax but had no option for refills for obs. Um, I think they told me to avoid contact during obs but they didn't give me any pamphlets. My cultutre result came back a week later as negtive. That was confusing but I KNEW I had herpes so I ignored the negative culture.

muffin ~ GHSV1 since 1986

Anyone who has sex is at risk for herpes.

muffin through the years...

>

Paragraphs are a wonderful thing.


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pasm55
Member since Sep-22-07
570 posts
Aug-16-08, 12:04 PM (CST)
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4. "RE: Not Awful."
In response to message #3
 
   My doctor experience was not good. I went to the doctor after my initial ob and told him about all the horrific pain I was experiencing. He did a visual and said I didn't have h because he would see vessicles if I did have it and he saw nothing. He then wrote me out a prescription for valium, which I did not fill.

Pasm


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lab47
Member since Oct-1-07
192 posts
Aug-16-08, 12:55 PM (CST)
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5. "docs"
In response to message #0
 
   I didn't realize how great my doc was till hearing about everyone else's. She was kind, did a typed culture, listened to me while I cried, and scheduled and follow up appointment to talk about herpes, my feeling, etc.


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muffinadmin
Member since Sep-10-04
6230 posts
Aug-16-08, 01:12 PM (CST)
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6. "RE: docs"
In response to message #5
 
If you did have a great experience, please consider recommending your doctor for the HHP doctor page to help others have a positive experience. To do so, just go to the Home Page and click on "Doctors" on the left hand side OR pm any moderator.

Thanks!

muffin ~ GHSV1 since 1986

Anyone who has sex is at risk for herpes.

muffin through the years...

>

Paragraphs are a wonderful thing.


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C16679admin
Member since Aug-29-06
9733 posts
Aug-16-08, 01:14 PM (CST)
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7. "RE: docs"
In response to message #5
 
   LAST EDITED ON Aug-16-08 AT 01:15 PM (CDT)
 
I'm not voting b/c I wasn't diagnosed while in the doctor's office.

I saw a male doc who was not my regular physician b/c I had just learned you could get tested for Herpes and that 1 in 4 women have it and 90% don't know it. I had been unaware of those stats, but in the past I had been involved with a guy who had Herpes, so I was worried that I could have it without symptoms.

I tell this to the doctor (who also brought a male med student into the exam with me--they did ask my permission) who tried to dissuade me from getting tested. Said I probably didn't have it without symptoms. Said it wouldn't matter anyway, I probably wouldn't pass it on without symptoms. Didn't look at me when I asked, wouldn't you have an obligation to tell partners if you were positive. When I insisted I wanted the test, he then said he would "have to" test me for all other STDs, as though that would scare me off. I said, great!

I had already done a little research courtesy of the ASHA hotline and website, so I knew what tests I wanted done. I had also written down what was the right one for HSV, so I asked the doctor which one he was giving me (had my little piece of paper clutched in my fist) and when he said, "the best one there is--the Herpeselect!" I was so relieved.

It took them 11 days to get back to me with my results despite my making several phone calls asking about it. The nurse told me on the phone that it was positive but that the doctor said I was just "exposed". And I said, well it's the test for Herpes and it's like 95% accurate or something, right? She basically agreed with me. Anyway, I was pretty sure there was no such thing as "exposed".

So, at least my testing was done right, though obviously I wasn't given a lot of accurate info. Despite my being annoyed with that doctor, I didn't feel that they were looking down on me or anything. And I have told 3 other doctors that I'm positive and never had an unprofessional reaction out of any of them, though again, a couple of comments that I don't consider to be really accurate. One gynecologist was coming off too judgmental for my liking when she found out D. and I don't always use condoms (and he's negative). I don't see her anymore.

Good poll!

C.


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kms75
Member since Oct-6-08
85 posts
Oct-21-08, 08:30 PM (CST)
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13. "Great experience at the docs"
In response to message #5
 
   LAST EDITED ON Oct-21-08 AT 08:48 PM (CDT)
 
I couldn't have had a better experience at my doc. I called at 8am and told them I was terrified because the symptoms I was having, swollen glands in the groin and a severe rash on my hip, and that I researched possible diagnosises and didn't know what else to do. They threw me in as soon as they could that day. I think they had to move patients or bump someone to a later time so I could come in. The nurse was so awesome and respectful. My doc was so tender and supportive. I got the meds I needed and he ordered blood tests right then. When I called with questions, the nurse remembered me and even told the phone nurse about me so that I would have both of them to talk to. All of them listened to me and were very sensitive to my situation and treated me with the utmost respect. I never felt ashamed or dirty. They gave me my papers when I went back in and even explained what it meant. Of course I didn't understand any of what they were saying b/c I was still pretty much in shock, so I came to Auntiejessi and she translated it for me in lamens terms. I was terribly depressed from this and all the other stuff I was dealing with but, having the support from my doc and this site helped more than I can say.

KMS75


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Lenoreadmin
Member since Oct-22-04
4277 posts
Aug-16-08, 03:44 PM (CST)
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8. "doctors."
In response to message #0
 
   I called a STD phone line when I started having recurrent outbreaks on my butt/lower back after a similar outbreak on the back of my upper thigh. They told me that you didn't get herpes in those locations and didn't recommend any follow up. For awhile, I thought I had something "like herpes" and eventually I did enough research and realized that I did have genital herpes even though my outbreaks weren't genital.

Eventually, I saw my doctor when I was having an outbreak. He looked at it and asked me if it was bothering me. I said no and that was it.

I still haven't been officially diagnosed which at times makes me feel a little bad since I do recommend testing.


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graceadmin
Charter Member
13334 posts
Aug-18-08, 08:30 AM (CST)
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9. "RE: doctors."
In response to message #8
 
LAST EDITED ON Aug-18-08 AT 08:32 AM (CDT)
 
My experience was over 20 years ago too so I didn't vote in my own poll either. I actually already knew I had genital herpes before I ever went to be seen. I was told by a former partner over a year previously that he had been diagnosed as having hsv2 and he was sure it was from me. Suddenly that "zit" on my labia and a former partner's behavior made sense. Of course I'm a frequent boater on that famous river - de nile - so I figured it wasn't me he got it from anyways and pretended I couldn't have herpes. Well fast forward over a year later and I get the ob from hell that was so obvious even a 1st year medical student could've diagnosed me and I went to a walk in clinic at the local mall where they looked at me, took a culture and told me to call back in a week for results ( which I"m not actually sure I ever did since I knew it was herpes anyways ) , they handed me an ASHA pamphlet and a prescription for oral acyclovir and topical zovirax and sent me out the door with a dirty look.

My regular family med doc is terrific with my herpes thankfully! He never questions anything I say about it and keeps on giving me my prescriptions and usually has questions to ask me about his other patients with herpes because he knows what my "hobby" is He's also the guy who suggested I try this new thing - daily suppressive therapy all those years ago when I was having ob's 1-2x/month too which was a lifesaver for me! My urogynecologist is also terrific about it not that he has to deal with my herpes much.

grace

The first step in stopping the perceived stigma about genital herpes - is to stop believing in it yourself


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toughbreak
Member since Aug-21-08
14 posts
Aug-21-08, 11:23 PM (CST)
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10. "two different experiences"
In response to message #0
 
   LAST EDITED ON Aug-21-08 AT 11:33 PM (CDT)
 
my original testing and visual diagnosis happened at a clinic. i had made a monday appointment with my regular gyno, but over the weekend my symptoms got too painful to bear, so i went to a clinic.

though i guess the pain of the culture could not have been avoided (and good LORD did it hurt), afterward while i was sitting on the table in tears, the doctor and the nurse just looked at each other sort of uncomfortably. i was too much in shock to really have any questions, so they shoved some pamphlets at me and sent me on my way.

i kept my monday appointment with my gyno so that she could order a blood test for me. she was a totally different story. she was wonderful, rubbed my back sympathetically while i cried, and berated the scumbag who had knowingly given me the the virus and then stopped calling. she went over my treatment options with me (pending the results of my blood test) and spent ample time answering my questions. she even offered up a prescription for darvocet, even though i told her the worst of the pain had subsided.

so yeah. two very different experiences. the first one was absolutely terrible, one of the worst life experiences i've had to date, so i chose red.


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Cecile
Member since Aug-22-08
16 posts
Aug-22-08, 05:16 AM (CST)
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11. "RE: two different experiences"
In response to message #10
 
   I had 2 different experiences as well... I kind of knew going in that it was herpes, I couldn't imagine what else it was. But the doctor was SO cold. Basically he examined me and was like, "oh, yeah, you have herpes". I got a bit upset (SHOCKING, i know), and he was like, "what's wrong, why are you upset?" This guy was such an asshole. I mean, come on, I know you see this every day... but have a LITTLE sympathy. He gave me meds and sent me on my way.

I came back 3 weeks later to get my culture results and thankfully saw another doctor who was AMAZING. He was reassuring, answered all my questions, made me feel a lot better. Plus he talked to both me and my boyfriend together and made us realise what our options were. I told him about the other doctor, and he was like, "I know, it's easy for us to not think it's a big deal because medically it's not, but obviously I know it takes an emotional toll".


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Scooter
Member since Sep-27-08
500 posts
Oct-12-08, 00:56 AM (CST)
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12. "RE: two different experiences"
In response to message #11
 
I unfortunately went to my obgyn's PA (physicians assistant) he was not available that day and I was desperate to get in. The PA was very sweet but uninformed. I have from time to time, thought about dropping off the westover heights booklet for her. Actually I think I will it a point to do that. I knew it was my primary outbreak but she didn't recognize it although it was a "textbook" case. I was only given 2 days of tx and in 3-4 days had another very bad breakout which unfortunately infected a lot of cells. When I was swabbed at my ob's I told him I was not given enough medication. He said, well she gave you 2 days of Famvir? I said NO DR SMITH a primary is treated with 10 days of antivirals. Unfortunately practitoners are just not that educated and up on herpes. I voted blue.

Scooter

"The two most powerful warriors are
patience and time". Leo Tolstoy



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Landlover
Member since Aug-25-08
168 posts
Nov-24-08, 10:36 PM (CST)
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14. "RE: two different experiences"
In response to message #10
 
Well
I have had very different experiences with the last 2 docs.

I was diagnosed 18 years ago shortly after my marriage, I was so numb I don't remember much except the word Herpes.

My last 2 ob/gyns for my 2 pregnancies never thought to test me for anything, since I had no OBs at the time and I told them upfront about the H.

I really was not too concerned until I got divorced, and crap, now I had to deal with the H and dating.

So I had a general Physican, she felt there was absolutely no reason for an IgG since she thought H was H, doesn't matter. I had to beg for an HIV test since my X was a drug abuser.

Now I recently got restested, twice for H with an IgG. The planned parenthood on 11th and Peoria has a wonderful doctor that actually had a conversation with me about it, and felt I needed piece of mind.

So he had me tested for everything, and I mean everything. H1 and 2, syphillus, all the hepatitis, chlamydia, gonorrhea (sp). To bad he is not in private practice, but my insurance goes into effect soon and I will need to find a doc on my plan. This is just his retirement gig.


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missmellow
Member since Oct-12-09
6 posts
Oct-14-09, 06:37 PM (CST)
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15. "RE: two different experiences"
In response to message #14
 
  
* First Doctor got me to do my own swab (!- ? I had no idea how to get a good swab), sent me for a blood test and told me to go buy some linocaine.
Obviously it came back negative....

*Second doctor (I knew that swab would be wrong so i went to another doctor)...she looked straight at it, took a swab, said 90% sure... results came back negative, Valtrex given.

*Successive outbreak- (month later - when diagnosed): swab taken in time,POSTIIVE gHSV1- information given, script for Valtrex given for daily suppressive medication.... (not up to date- as gHSV1 doesnt need to take daily suppressive medication).


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folie
Member since Dec-23-09
142 posts
Dec-30-09, 00:03 AM (CST)
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16. "could have been better"
In response to message #0
 
I don't think my normal gyn/ np knows a lot about herpes. When she called me back with the results, she told me I'd need to get typed in 3 months with a blood test, and I had to be the one to tell her that you can tell the type from a culture. She did insist on a culture, though, and checked my cervix for scarring, and she told me (seeing, I'd imagine, that I was on the verge of tears) that I would be okay and live a normal life. She wrote an rx for Valtrex, but she didn't really give me any information on it or on my condition. I went in for the initial test and never scheduled a follow-up because she didn't offer it. She was (as she always is) very sympathetic, but I just didn't feel like she knew a whole lot.


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Raven00144
Member since Sep-9-07
2375 posts
Jan-16-10, 06:59 AM (CST)
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17. "RE: could have been better"
In response to message #16
 
   I answered #1 because it described the closest to my experience. I was dx'd some 20 plus years ago at the free clinic. It was a visual since they did not offer any other kind of testing, and no sooner than I was told what it was, I was rushed to get dressed and told to get out--they had other patients to see. I was not given any information at all and there was no internet like there is today and I had to rely on word of mouth and of course at that time and my age, I was afraid to ask people. Those that knew or thought that they knew anything about HSV, was just feeding into the stigma of this.

I was too old to be on my parent's insurance and was only working part-time at the time with no benefits. I finally saved up enough money to see a regular doctor about the time of my second OB. He was this kewl Dr. with long hair in a pony tail that knew much about HSV. He had a better bed side manner and helped me cope with this. Eventually he had enough of the medical rules and moved down to the 'islands' so that he could practice medicine the way he wanted to. About this time, I began seeing an OB/GYN that was a walking text book on anything that had to do with the female body. He has helped me through the years until his untimely death this year. Now I am seeing one of his partners at the same practice.

My OBs acted just like HSVII over the years but finally got tested about 2-3 years ago to confirm my status. Since my OBs are not as often or as severe anymore I was hoping for GHSVI but I have GHSVII. OBs do get better in time.

My initial dx was bad but I was able to make it better in time by finding the right doctors.

Raven00144


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SeasonOfChange
Member since Jul-11-10
10 posts
Jul-22-10, 10:13 PM (CST)
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18. "It was aweful"
In response to message #0
 
   I was just diagnosed in June. My doc of 19 years did only the non-specific HSV test. Doesn't call me with results. I called, was asked, "Have you ever had a cold sore on your mouth?" =yes. Told me good, then no big deal.

A a couple days later I requested HSV type specific IgG & IgM. He actually argued with me that I didn't need to waste my money on these tests! I persisted, got the tests don & came back positive for II.

I asked for Valtrex or alternative & he told me I didn't need medication because of my age (I wasn't childbearing age). I brought up the fact that I am single & sexually active in spite of my age (53) & wanted to be treated. He wouldn't give me the medication. Told me I should stop fooling around & that I should trust him, because he's the doctor (I'm a medical assistant).

Needless to say, I walked out. Found a new doc (PA-C actually) and am being treated daily!

It is what it is; Be accepting.


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Rajahadmin
Charter Member
15328 posts
Jul-23-10, 11:24 AM (CST)
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19. "Oh, dear..."
In response to message #18
 
I'm glad you walked out. We hear way to many tales like this. The level of ignorance on the part of medical providers about this virus is astounding. There are excellent CME courses online about the diagnosis and treatment of herpes. Can't they spare 20 minutes to watch the presentation even if they don't take the test and get the CME credits?

I'm very disappointed at the "stop fooling around" comment, too. I've got more than a decade on you and I'm still sexually active.

"Do the Right Thing. It will gratify some people and astound the rest." - Paraphrased from Mark Twain


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SeasonOfChange
Member since Jul-11-10
10 posts
Jul-24-10, 11:40 AM (CST)
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20. "RE: Oh, dear..."
In response to message #19
 
   Good for us Rajah! Hehehe

Just wanted to say thanks for the reply but mostly for your & everyone else's work & support on this site. I hung around, read and reread until I calmed down enough to join such a wonderful bunch of people!

I hope in the near future, my experiences with accepting, coping, learning & moving on while living with HSVII helps another one of us with the virus.

There are days I keep telling myself..."it's only a virus, like the flu".

It is what it is; Be accepting.


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