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Subject: "Lichen Sclerosus Et Atrophicus"     Previous Topic | Next Topic
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Tiff2
Member since Dec-29-06
8 posts
Jan-10-07, 10:50 AM (CST)
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"Lichen Sclerosus Et Atrophicus"
 
   So I think I may finally have got the diagnosis I have been searching for...the symptoms finally fit and everything. I was just wondering if anyone had any personal experience or knowledge of Lichen Sclerosus Et Atrophicus? I am having trouble finding information about the cause also, any help would be appreciated! Thanks.


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  Subject     Author     Message Date     ID  
  RE: Lichen Sclerosus Et Atrophicus C16679admin Jan-10-07 1
  RE: Lichen Sclerosus Et Atrophicus windyadmin Jan-10-07 2
     RE: Lichen Sclerosus Et Atrophicus graceadmin Jan-11-07 3
         RE: Lichen Sclerosus Et Atrophicus Tiff2 Jan-12-07 4
             RE: Lichen Sclerosus Et Atrophicus graceadmin Jan-12-07 5
                 RE: Lichen Sclerosus Et Atrophicus love hurts Jul-24-11 6

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C16679admin
Member since Aug-29-06
9733 posts
Jan-10-07, 01:48 PM (CST)
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1. "RE: Lichen Sclerosus Et Atrophicus"
In response to message #0
 
   I've never heard of that.

You may want to repost this in Support where more people will see it. Maybe one of our nurses will know about it.

Are you going to check it out with your doc?

C.


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windyadmin
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8251 posts
Jan-10-07, 02:35 PM (CST)
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2. "RE: Lichen Sclerosus Et Atrophicus"
In response to message #0
 
I'm pretty sure the reason you can't find information on the cause is that nobody has figured out what causes it. You've probably already seen this, but here's a good overview -
http://www.emedicine.com/derm/topic234.htm


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graceadmin
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13334 posts
Jan-11-07, 07:02 AM (CST)
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3. "RE: Lichen Sclerosus Et Atrophicus"
In response to message #2
 
Lichens is fairly common - the atrophicus part means that it's been there awhile and is causing skin changes that actually cause the skin to atrophy. Not treating it promptly can lead to permanent skin damage/issues - it can cause the vagina to actually all but close up.

You can diagnose lichens thru either a skin biopsy or even a visual exam would be ok. It's usually treated with high strength topical steroids. I don't remember if you also have herpes or not but if you also have genital herpes be prepared for increased ob's if you use the steroids. Definitely go on suppressive therapy if that's the case. I had a different form of lichens and it responded well to elidel cream and it didn't trigger my herpes though I was also on suppressive therapy at the time. You can also use topical testosterone to treat lichens but the preferred treatment is the steroids.

If lichens has gotten to the atrophy stage it's pretty darn obvious - if you haven't googled pictures of it yet - do so. If a doctor has been missing something that obvious then that's pretty sad. Of course you can have lichens sclerosus without atrophy which might be harder to diagnose without a biopsy. Have you made yourself an appointment to be seen? You can see either a gyn or a dermatologist for this.

grace

The first step in stopping the perceived stigma about genital herpes - is to stop believing in it yourself


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Tiff2
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Jan-12-07, 04:13 AM (CST)
 
4. "RE: Lichen Sclerosus Et Atrophicus"
In response to message #3
 
   So you would then consider a visual diagnosis to be acceptable? I went to a gyno. on Wed who gave me the diagnosis, but I'm considering going somewhere else for confirmation/a biopsy. Yeah, I have HSV-2...topical steroids do actually cause more OBs? I dont know if mine necessarily looks like the pictures I've googled, that would be my main concern. And more than one doctor has missed this, which something is obviously wrong..Thanks Grace!


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graceadmin
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13334 posts
Jan-12-07, 01:10 PM (CST)
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5. "RE: Lichen Sclerosus Et Atrophicus"
In response to message #4
 
If you need the peace of mind - ask for a biopsy. it's not near as bad as it sounds and can be done there in the office and you'd have confirmatory answers in about a week.

It took me over a year until I got answers as to what was going on - it was actually dumb luck that during one of my monthly appointments with my 4th doc that he thought he saw some skin changes, biopsied the area they were in and we finally got a better handle on what was going on. I had had reactions in the past to topical steroids in my genital area so I refused topical steroids and he sent me to a dermatologist who worked with the 2 of us to come up with a treatment plan. That's how we came up with the elidel cream. If you decide to use it - don't be surprised if the first couple of days you use things are "unusual" down yonder. I'm not the only person who had a "hot" ( and slightly bothered ) reaction to it the first time I used it - unfortunately that feeling went away after a few days

grace

The first step in stopping the perceived stigma about genital herpes - is to stop believing in it yourself


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love hurts
Member since Jul-8-10
19 posts
Jul-24-11, 07:10 AM (CST)
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6. "RE: Lichen Sclerosus Et Atrophicus"
In response to message #5
 
   Hi all, I have just done some searching because I wanted to speak to some people who have experienced Lichen Sclerosus. I am worried I may have it or developing it. I would like to know how your initial symptoms presented?

Currently I have had this small spot around the entrance of my vagina which is sore and red and continuelly splits. I dont remember it being itchy but if it was I probably would have thought it was due to my HSV2. I have had this problem area for probably more than a year now and have been seeking help for it since November. So far doctors have put it down to a 'tear' which doesnt seem to want to heal (or it does and then tears again)

It is really confined to one tiny area (less than 1cm) just hiding between a fold of skin. It occasionally can look white which I had put down to scarring. It is not itchy just painful with sex. I am just worried it may be something more serious than these doctors are suggesting.


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