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Subject: "Woo Hoo!!!"     Previous Topic | Next Topic
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Cara (Guest)
Guest
Jun-16-03, 09:56 PM (CST)
 
"Woo Hoo!!!"
 
   Since being diagnosed with h2 4 months ago I have been terrified of telling any prospective partners. However, I shouldn't have been because the first person I told was awsome about it! He listened attentively while I broke down and told him the whole story, asked questions, and said that he was sorry that I had to go through it. I don't know why I was so surprised that he still wanted to kiss me. It's like it didn't even occur to him to let it get in the way of whatever we were starting. Really, this disease is not that big of a deal. For all you newbies who are freaking out about it, don't. I know it's been said before on this site, but if the herpes gets in the way of the relationship, then it wasn't meant to be anyway. How a person reacts shows a lot about their personality. If they can't handle this small annoyance, what else are they going to flake out on? Those people are not the ones you want to be your life partner. They're the kind of people who will run from problems, not confront them. Thanks for all the info on this site. Good luck and stay strong.


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  Subject     Author     Message Date     ID  
  RE: Woo Hoo!!! CAT11 Jun-16-03 1
  RE: Woo Hoo!!! bvk Jun-17-03 2
     RE: Woo Hoo!!! Sarah Aug-17-03 3
         Vulvodynia howladmin Aug-17-03 4
         RE: Woo Hoo!!! lumina5 Aug-18-03 5
             Neurotonin for herpetic vulvodynia?? Rajahadmin Aug-18-03 6
                 RE: Neurotonin for herpetic vulvodynia?? Coopsie Aug-19-03 7
                     RE: Neurotonin for herpetic vulvodynia?? lumina5 Aug-20-03 9
                 RE: Neurotonin for herpetic vulvodynia?? lumina5 Aug-20-03 8
             RE: Woo Hoo!!! sdgurl4ever Dec-31-09 11
         RE: Woo Hoo!!! leadkeel Apr-28-09 10
  RE: Woo Hoo!!! folie Jan-25-10 12
  RE: Woo Hoo!!! queenie Sep-01-12 13
     RE: Woo Hoo!!! yakima2013 Mar-02-13 15

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CAT11
Charter Member
2042 posts
Jun-16-03, 11:35 PM (CST)
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1. "RE: Woo Hoo!!!"
In response to message #0
 
   Way to go Cara! Glad things worked out.


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bvk
Charter Member
8 posts
Jun-17-03, 03:15 AM (CST)
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2. "RE: Woo Hoo!!!"
In response to message #0
 
   go cara....
I found out and told right away....my guy said "no big--deal. That he had fallen in love me and if i cared enough to tell him, take meds, and obstain from intercourse( I happen to enjoy oral sex - I think he looks forward to the ob now). Then he will take his chances with me. After all he could drop me start dating, have sex or make love with someone who was either dishonest and not tell him(hoping that they don't give it to him or not know they have it(after all- think about how most people get h)
If you think about your chances of getting h---which seem to be pretty common. If you are going to roll the dice-How would you like to acquire it? In a noncommitted relationship? Or with someone who cares enough to try to protect you from such a virus!Love is a choice... and h is minor compared to all the other risk in a relationship. My man choose to take his chances with me!


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Sarah
Guest
Aug-17-03, 03:01 PM (CST)
 
3. "RE: Woo Hoo!!!"
In response to message #2
 
   I have nothing against anyone with herpes but I cannot risk aquiring it because I suffer from a chronic vulvar pain syndrome called Vulvodynia and cannot tolerate one more iota of pain in that area . Initially, I assumed that my symptoms were herpes but I have since tested negative for both HSV1 and HSV2. Since intercourse is out of the question because of the vulvodynia, finding a partner is slim. I have however come across a group on the internet called Medical Celibates and I am hoping to find a companion that can relate to me. I miss the company of a gentleman much more than sex. Good luck to everyone on this site and I am so happy for those that have found nice mates. It gives me hope.


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howladmin
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4139 posts
Aug-17-03, 10:15 PM (CST)
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4. "Vulvodynia"
In response to message #3
 
   LAST EDITED ON Aug-18-03 AT 08:24 AM (CDST)
 
Hi Sarah-

I had a friend who was diagnosed with vulvodynia, she struggled with it for several years. Because her mother was a massage therapist, she had a consult with a well know medical massage therapist. Her vulvodynia was referred pain caused by microscopic tears in the muscles and ligaments in her lower back and thighs. It formed scar tissue as well. It was from exercising too hard, too long, without good technique. After 6 months of very intense massage the worst pain left, now she goes every few months to maintain the work and she has a normal sex life.

Howl


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lumina5
Guest
Aug-18-03, 03:29 AM (CST)
 
5. "RE: Woo Hoo!!!"
In response to message #3
 
   I actually aquired vulvodynia through the herpes virus. My first outbreak was so bad that it damaged nerves. So, I feel your pain! I know what it's like, it's rough. And sex is really difficult. It's not impossible for me, but it's something that is extremely difficult to do. I've only been with my ex, who is the person who gave me herpes. But, I have to say, the vulvodynia effected us much more than the herpes did. BUT, he was the person who gave me herpes without even telling me had it it. And he also refused to have to face any emotional problems. He was a horrible partner, would just shut down entirely and leave me in the dark about everything. Not to mention a compulsive liar. So, that tells you something about him right off the bat. I don't blame our relationship ending due to herpes or vulvodynia, I blame it on the fact that he's your basic bad person. Just not someone with a good heart, ya know?

Vulvodynia is a tough one. I'm having a lot of problems with it. Right now, what I am trying is a yeast-free diet. I'm doing it through this one book that is extremely strict. Many women have gotten better because they have changed their diets or eliminated all chemicals, sugars, and yeasts from what they eat. Exercise and physical therapy is also something a person needs to try. I would stay away from creams, etc. They always seem to be bad news.

You will find a partner who accepts you with vulvodynia. Who knows, your symptoms could very well go away tomorrow. Or at least decrease a good deal. Letting them know after a few weeks of dating that you're not interested in having sex with them is probably something that's a good idea. It just sets things straight and you can develop a friendship before anything else. This is the approach that many women I've talked to have tried. Seems to work well for them and they find 'the one.' Whatever you decide, just don't limit yourself too much. The person you're meant to be with may just be around the corner.

Take Care,
Am


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Rajahadmin
Charter Member
15365 posts
Aug-18-03, 09:53 AM (CST)
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6. "Neurotonin for herpetic vulvodynia??"
In response to message #5
 
Am, if your discomfort is due to nerve damage AKA Post Herpetic Neuralgia, that drug might be helpful. Have you discussed this with a neurologist? You might ask Lightbeing about it as she takes it for something else. My neurologist offered it to me last week to help with my peripheral neuropathy in my feet. I passed on it for now as it is a slight irritation rather than a nagging pain issue so far.

"Do the Right Thing. It will gratify some people and astound the rest." - Mark Twain


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Coopsie
Guest
Aug-19-03, 09:40 AM (CST)
 
7. "RE: Neurotonin for herpetic vulvodynia??"
In response to message #6
 
   I am recently discovered from this board that the pain I might be experiencing could be due to vulvodynia. I'm wondering if any of you could read about my symptoms below and let me know whether you experience the same thing (and don't worry, I have an appt. with a new gyno on Monday to ask her about it).

I have had GHSV-1 since April and had a really bad primary. After that, I have had repeated OBs. They were finally starting to calm down a bit a month ago. I hadn't had my period in a long time because I had been skipping it with the Pill (because the herpes was already so bad), but I decided to have it then, at the end of July. With the period came intense, shooting pains and swollen bumps all over the inside of my vulva. It didn't look like herpes, because they weren't lesions. Horrible itching accompanied these symptoms. I struggled for about a four days with the intense pain (kept me up at night and was random and sharp), then went to my general practitioner, who didn't suggest it would be anything but herpes. She prescribed me neurontin, percocet and lydocaine cream.

All have helped somewhat (love the percocet , but I don't want this to go on forever! The bumps are gone and the pain has localized at the top of my clitoris. It's milder even w/o the drugs, but still really annoying and painful. The herpes is the best it's been (though still a daily battle), but the nerve pain and itching is driving me nuts. The lydocaine helps the most, but i know it's not something I can keep using for a long time or I'll do more bad than good.

I know that with vulvodynia, pain is generally associated with sex, but I don't have that. I have always had a little bit of pain upon entry, but it's really not bad and passes instantly. Also, the area does not hurt to the touch.

Any help would be greatly appreciated. I'm not sure I can make it to next week! (p.s. I also have my period right now, which seems to have brought on more of the pain and itching than last week).


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lumina5
Guest
Aug-20-03, 01:32 AM (CST)
 
9. "RE: Neurotonin for herpetic vulvodynia??"
In response to message #7
 
   I'd definitely watch your diet. Stay away from cheeses and chocolates. This will effect herpes, calm it down, too. Also, keep a pain and irritation journal everyday. Maybe even every few hours, write down what kind of irritation you seem to have after every meal. Changing your foods is going to be KEY here. Also, keep track of the clothing that you wear, etc. When you go to the bathroom, be sure not to 'rub' the area when you wipe, lightly dab it.

I also have a lot more itching than anything else. Although the 'bruised' feeling tends to drive me loony at times. And like you, I don't get a lot of pain with intercourse. I haven't had it in awhile, but I didn't then. I'm sure I wouldn't now. *laugh* BUT, the downfall is that when I do have sex, I am extremely irritated afterwards for weeks. It's awful and I'm in such a bad mood. Depression really kicks in. So, I certainly can relate to you there.

Look up vulvodynia in yahoo groups. You'll find a rather large one and the women there are extremely helpful. Ask them any questions that you need to. Learning from other women is what has helped me the most.

The bumps are common with vulvodynia. Especially if they reside in the vestibule area. You ease some of the irritation with baby powder. Some people say that it's dangerous somehow, but I completely disagree. After all, they use it on babies and it's due to the ingrediants. Nothing harsh. That'll really help you out with the itching. Also, don't wear any underwear. Try to stay away from it. Wear very loose fitting clothing. Anything tight is going to aggrivate the area. In fact, go out and buy yourself a new wardrobe! That's what I've decided I'll do once I get the cash.

There are many anti-depressants that you can go on for this. Start out small and work your way up in dosage. That should help somewhat. Nuerontin is what helps me. I really hope you find some relief. Remember to check out the yahoo group for vulvodynia. You can't miss it and it'll really change your life.

Take Care,
Am


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lumina5
Guest
Aug-20-03, 01:24 AM (CST)
 
8. "RE: Neurotonin for herpetic vulvodynia??"
In response to message #6
 
   Funny you should mention that. I've been on it for about 6 months now. It works pretty well, although I haven't seen a huge drop in the pain/irritation. I'm only on 600mg because I'm extremely sensitive to meds. Probably lucky for me. I'll probably up the dosage in the future, to see how that works.

Take Care,
Am


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sdgurl4ever
Member since Dec-31-09
1 posts
Dec-31-09, 07:36 PM (CST)
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11. "RE: Woo Hoo!!!"
In response to message #5
 
   Hi there. This is my first post so to be honest I don't know how this will go. I decided to write to you because your story is very similar to me. My ex was the same exact way. He is also the only guy I have had sex with. When I told him, he denied even having herpes and didn't care about my feelings at all. It was horrible. I'm still really torn up about this too. I was 13 when he gave it to me. Actually your description of your ex mad em think you had been with my ex. I'm not completely sure what your problem actually is, but I have a problem with sex too. One side of my labia minora is longer and has different feeling, very close to pain, and I don't enjoy intercourse at all. Hope I didn't bombard you but it feels nice to finally vent....
Sarah


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leadkeel
Member since Apr-23-09
2 posts
Apr-28-09, 01:25 AM (CST)
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10. "RE: Woo Hoo!!!"
In response to message #3
 
   Have you tried Nortiptyline ? I read an article recently where a person with this condition was cured by the use of this old-school antidepressant it somehow kind of re-booted her brain. Good luck !


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folie
Member since Dec-23-09
142 posts
Jan-25-10, 12:31 PM (CST)
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12. "RE: Woo Hoo!!!"
In response to message #0
 
Glad things worked out! I find that all the people I've told have been very understanding (if not a little pitying, which bugs me a touch). I told a past partner, and after hearing some stats, she said she'd just throw some dental dams in her bag for good measure. It's nice to know that you're still attractive to other people. I mean, as a friend pointed out, we got this from having sexual contact with someone, so we've got to be at least a little appealing! He called it "the sexy virus," just to keep me laughing.


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queenie
Member since Mar-26-07
21 posts
Sep-01-12, 06:59 PM (CST)
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13. "RE: Woo Hoo!!!"
In response to message #0
 
   u don't have to tell anyone u have .sv. take p.a.b.a. omit sugar and bread. pastries and some dairy products . as long as u do this for the rest of your life. u will not get an outbreak. viral shedding is a lie .


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yakima2013
Member since Mar-2-13
7 posts
Mar-02-13, 09:19 AM (CST)
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15. "RE: Woo Hoo!!!"
In response to message #13
 
   LAST EDITED ON Apr-08-13 AT 02:09 PM (CST) by Rajah (admin)
 
Sorry for those who have had such a rough road with complications due to HSV2. Make sure to consult with a competent obstetric surgeon, not a regular OB/GYN. Often there is surgery that can correct or at least minimize these issues.

Check out -------.com, lots of good research on the topic. Not trying to promote anything to you guys just trying to help... cheers!


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