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Subject: "a false-positive herpes test ???"     Previous Topic | Next Topic
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newgirlnva
Member since Dec-2-08
2 posts
Dec-02-08, 10:48 PM (CST)
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"a false-positive herpes test ???"
 
   I first want to say I have gone all my life without knowing too much about Herpes. My husband had a affair seven years ago, and it ended in Divorce. When I went to the doctors after finding out, I explained that I wanted to be tested to make sure I didnt have and STD's. After my divorce I was involved in a 4 year relationship and a then a 2 year relationship. Ok so I move from my home state to this state and I see a New Doctor and she ask me if I like to be tested for STD's. Well I have insurance and so I say yes, theres nothing wrong with being safe and knowing. Well the doctor calls me up and says my test for Herpes is POSITIVE. I have never had a outbreak ever, ever and my husband,and the 2 relationships I was involved in they didnt have any issues. I ask my doctor how this is possible and she states I am a carrier. Well I still find it hard to believe, so I ask what are the chances the test can be wrong and the doctor says not likely, the test are pretty accurate. So I start doing research and I mean a lot of research. I was embarrassed and stressed, how could this happen!!!! How have I gone 40 years and been so Naive to this STD. I made a couple calls to my previous partners thinking it was the right thing to do. Then I meet a guy who had it as well. Let me give this guy credit he disclosed it to me immediately. He also found it odd that I never had a outbreak, and I think, I must be luck I am just a carrier. Well I think, since he has it and so dont I, well that makes it easy and he understands what I am going through.Let me just say disclosing you have a STD that you are stuckwith for life, to people that have no idea that this is like a cold and can be passed very easliy without a person ever knowing. I think I read the statistics are 2 out of 5 people have it and have no idea they have it. Needless to say because it was a long distance relationship, I was only intimate with him once. About SEVEN months later, I get a letter in the mail from the lab that processed my results stating that one of the test that was processed in the lab might have been reported wrong to my doctor, so I should call my doctor and the test will be rerun for free. Well I had cholestrol and sugar and along with a bunch of other test, so of course I think it is probely mu sugar or something. So I call the doctor and they state it was the Herpes test that might be inaccurate and they have been retesting and could get me in a couple days. So now I am stressed again, and I am praying with all my heart that it comes back Negative. Well my doctor calls me and gives me the best news one can get I am NEGATIVE. I know that I should be relieved but I am also humiliated and torn to pieces that I called my previous partners and told them I had it and thank god now I got to tell them it was the lab that made the mistake. I am very upset that it took this lab SEVEN months to find this error. This False Positive test was the worst thing for me that I had to go through. I know it is not a life threatening disease, but there are so many people like me that just have no idea of how easy this is being spread all around.
Has anyone had this same or similiar experience???? Does anyone have any suggestions on whether i should pursue this mistake with the lab or just be thankful and move on with my life. I look forward to hearing from anyone that has a comment or a suggestion.


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  Subject     Author     Message Date     ID  
  RE: a false-positive herpes test ??? 1 sad girl Dec-02-08 1
     RE: a false-positive herpes test ??? silver lining Dec-03-08 2
         RE: a false-positive herpes test ??? newgirlnva Dec-03-08 3
             RE: a false-positive herpes test ??? silver lining Dec-03-08 4
                 RE: a false-positive herpes test ??? C16679admin Dec-03-08 5
  RE: a false-positive herpes test ??? evilchick Dec-28-09 6
     RE: a false-positive herpes test ??? Lenoreadmin Dec-29-09 7
         RE: a false-positive herpes test ??? Raven00144 Dec-30-09 8
  RE: a false-positive herpes test ??? Windrider Jun-29-10 9
     RE: a false-positive herpes test ??? linda Smyth Jun-02-11 10
     RE: a false-positive herpes test ??? nikhil_3578 Nov-10-11 11

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1 sad girl
Charter Member
Dec-02-08, 11:36 PM (CST)
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1. "RE: a false-positive herpes test ???"
In response to message #0
 
   Doctors and labs both make mistakes in their jobs, just as we do. Fortunately this was a very small( except the stress you went through) mistake. I would say just to let it go. If they had major malfunctioned a surgery that left you in bad shape or something, yes, I would seek further consequences for them. For this however, be thankful you and your partners (to their best knowledge) are still hsv free and move on with your life. Take Care, and best wishes to you for your future.


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silver lining
Member since Aug-19-08
927 posts
Dec-03-08, 03:14 AM (CST)
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2. "RE: a false-positive herpes test ???"
In response to message #1
 
   So you found out that you are not a carrier of type 2 herpes. If i were you, i would now find out whether or not you are a carrier of type 1 herpes, so you can know if you are at risk or not when receiving oral sex from the majority of the population. (65-90% of people are carriers of HSV1 orally, and they can transmit it genitally during oral sex to the 10-35% of those who are not already carriers. happened to me. i assumed it was type 2 for about 5 months but then found out otherwise through a blood test.)

http://loveinthetimeofherpes.blogspot.com/


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newgirlnva
Member since Dec-2-08
2 posts
Dec-03-08, 07:38 AM (CST)
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3. "RE: a false-positive herpes test ???"
In response to message #2
 
   Silver Lining - my test was a blood test for both of the type 1 and 2. I am not a carrier of either I dont even have it. But now that I know because I have read up on this for hours on end, I am being so careful, Like I said I knew and heard about Herpes before but never really knew what it was. What scares me the most is people have it just dont know, because inless you ask to be tested for Herpes the doctors do not do it inless you are having symptoms. How is it you can go to the same GYN for over 10 years and even disclose to the doctor that your husband had a affair and you have been with new partners and the doctor not once ask or gives you the test for Herpes. The answer I got was "because if they tested everyone 50% of people would have it, it is like the common cold"..... I think the percentages are high because people just dont know they have it and are spreading it without their knowledge.............


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silver lining
Member since Aug-19-08
927 posts
Dec-03-08, 10:56 AM (CST)
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4. "RE: a false-positive herpes test ???"
In response to message #3
 
   20% of people test positive for type 2, and 65-90% test positive for type 1, depending on their age group.

When doctors say that half of everyone has herpes, or almost everyone has it, etc, they are talking about type 1.

I still think that they should test for both, and here's why.

I think it's obvious why people should know whether or not they have type 2; so they can reduce the risk to partners.

Type 1 is a little more tricky because it is considered to be the incredibly common cold sore virus. But the common cold sore virus is actually a sexually transmittable disease. Even more tricky is that most people have it and are capable of transmitting it, but the only people who are capable of it being transmitted to are those who don't already have it, and they are in the minority. which is why i personally think that in the case of type 1, you are more testing to see if you DON'T have it than if you do. Because if you don't have it, you will know that you are at risk while receiving unprotected oral sex from the majority of people. (or kissing them, if you're worried about getting it orally.) and you can make decisions based on what precautions you would or would not want to take against getting it.

what an experience you went through. at least you are now aware, and you now have empathy you would have never had before.

http://loveinthetimeofherpes.blogspot.com/


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C16679admin
Member since Aug-29-06
9733 posts
Dec-03-08, 12:22 PM (CST)
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5. "RE: a false-positive herpes test ???"
In response to message #4
 
   This thread really belongs over in Support.

If I were you, I would get actual copies of both the allegedly erroneous test AND the current test results and post them here. I wouldn't trust a darn thing I didn't see with my own eyes. What exactly was the mistake that the lab made? Did they give you the wrong test? Did they mix your results up with someone else's? Was the more recent test an IgG test? If your current test is a type-specific IgG test and says you're negative for both, then that's great news. It does suck though that you were given erroneous test results before. I guess that's another reason why it's not a bad idea to redo a Herpes test that comes back positive when you have had no symptoms.

BTW, I don't mean to sound even more grouchy, but I really dislike the use of the term "carrier". There is really no such thing as a "carrier" of HSV. If you have it, you have it, plain and simple. I am positive for HSV-II, but am asymptomatic. I'm not a carrier; I HAVE HSV. I'm just fortunate to not have symptoms to deal with.

C.


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evilchick
Member since Dec-28-09
1 posts
Dec-28-09, 09:59 PM (CST)
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6. "RE: a false-positive herpes test ???"
In response to message #0
 
   I recently had been tested for herpes and it came out positive i just dont know if i want to believe it yet without being tested again. the last time i went to my gyno they had told me i had HPV and i went through the colcoscopy and everything thinking that i had it. i believed i had it for a year and then it was time for my annual and then 2 weeks later i get my results in and im negative for HPV. they send their specimens to the same labs so im wondering if i go to a walk in or to plan parenthood in a diff town and get tested if the results would be different. i really want this second opinion because if the results are wrong again then i dont want to have to live with the stress of this all over again. i have been in tears since i found out. and i have no idea how it could have happened. ive been donating blood since i was 17 asmuch as i could and i know if i had any traces of it they would have sent me something in the mail saying how they couldnt have accepted it but i got nothing. also i was with my ex who was a virgin when we started dating and he didnt cheat on me or anything and we just broke up 7 months ago and i have been to the gyno while we were dating and donated blood while we were at the end of our relationship and nothing. i have had 3 partners since then one a virgin but used protection and the other 2 i used protection so this is making no sense to me. i have also not had oral sex since my ex.

i just dont know.
S


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Lenoreadmin
Member since Oct-22-04
4277 posts
Dec-29-09, 09:41 AM (CST)
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7. "RE: a false-positive herpes test ???"
In response to message #6
 
   Were you tested with a blood test or a culture? Why were you tested? Were you having symptoms? Did they tell you if it was type 1 or type 2?

When you donate blood they don't test the blood for herpes. Having herpes doesn't mean that you can't donate blood because it isn't transmitted through the blood. At least 60% of the population will test positive for HSV1, so it wouldn't leave too many people able to donate blood.

Condoms don't offer 100% protection since they don't cover the entire anal-genital area and the virus sheds from the mucous membranes in that area. It isn't spread by blood and body fluids like most STDs.

I don't know if you have HSV1 or HSV2, but it's pretty common to get genital HSV1 from oral sex. Not everyone with HSV1 remembers ever getting a cold sore. Most people with either type of herpes are asymptomatic.

It probably makes more sense to continue to post in the support section since this is the "success stories" section. You'll get more help and advice there.

It might be helpful to post your actual test results and then we can let you know if further testing is recommended.

This is not the end of the world.


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Raven00144
Member since Sep-9-07
2375 posts
Dec-30-09, 09:06 AM (CST)
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8. "RE: a false-positive herpes test ???"
In response to message #7
 
   I have GHSVII and have for well over 20 years and I give blood constantly. In fact, The Red Cross calls me to let me know when it is time and when/where they are having blood drives--they like my blood. I would not be concerned with giving blood with HSV. I just would not give while having an OB because you are suppose to be feeling well when you give.

Raven00144


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Windrider
Member since Jun-29-10
1 posts
Jun-29-10, 11:46 AM (CST)
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9. "RE: a false-positive herpes test ???"
In response to message #0
 
   I also received a false positive for HSV II at Quest Diagnostics, using I believe the HerpeSelect test. These tests yield results considered "low positive" if your index level is between 1.1 and 3.5. Low positives are usually FALSE positives. If you receive a low positive result, get retested using the Western Blot test, which is much more accurate. I did, and now I know I don't have HSV-II, or HSV-I, after spending a month thinking I had Herpes!


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linda Smyth
Member since Jun-2-11
1 posts
Jun-02-11, 08:58 AM (CST)
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10. "RE: a false-positive herpes test ???"
In response to message #9
 
   hi I recently went to the doctor because I had bumps underneath skin on my vagina. I had an idea where I received these, it ended up it was a staff infection, and once on antibiotics it immediately cleared up. I was scheduled for a follow up and for her to give me the blood results and I was told that my culture was a staff infection, and the blood test was positive with a 2.6. I scheduled an appointment with my regular doctor and I am going to have the test you mentioned that is more accurate. I did not understand this number system, but I am going to assume it is the first test you took as well. I think that if you are going to give someone this emotionally distressing news, the doctors should at the very least use the most up to date and accurate tests for diagnosis. My appointment is for tomorrow and I will post results of second test when I receive them. Wish me luck.


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nikhil_3578
Member since Nov-10-11
1 posts
Nov-10-11, 05:57 PM (CST)
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11. "RE: a false-positive herpes test ???"
In response to message #9
 
   Hi Windrider,

Where did you get the Western Blot Test done?


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