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Gothiclolita
Member since Mar-3-10
19 posts
Mar-09-10, 10:42 AM (CST)
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"Australians"
 
LAST EDITED ON Mar-09-10 AT 10:44 AM (CST)
 
Hands up? I'm interested to hear of how people in my country deal with this, success stories, stigma, etc.

Also quite displeased that we do not seem to have the myriad of H events that America seems to have. Would be good if there were more awareness and social events.

For anyone whose interested, 8 in 10 Australians over 25 have HSV-1 and 1 in 8 Australians have HSV-2, 1 in 5 of which show symptoms the last time I checked the statistics.


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Begbie
Member since Mar-6-10
84 posts
Mar-19-10, 05:29 AM (CST)
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1. "RE: Australians"
In response to message #0
 
   Hi Gothiclolita,

Well, Im an aussie but Only got the diagnosis a month ago so can't really help you out with your question. But I have also googled H events and there is SFA going on. Even the Self Help group in Melbourne seems to have shut down, I got no response to an email I sent. I know its not a bad thing that we have a lower incidence of H here than in the US but that makes it harder for us to find others with it. Also from reading on here it seems like the difference in the rates of Males and Females with H in the US is a lot closer. Here its stated as 1 in 6 women and 1 in 12 men.

So what have your own experiences been?

How long have you had it?
Where are you based?

Maybe we should start an event and make a bucketload of money as well as help people!

Unfortunately there aint no such thang as a time machine.


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Gothiclolita
Member since Mar-3-10
19 posts
Mar-23-10, 07:05 AM (CST)
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2. "RE: Australians"
In response to message #1
 
As yet I have not had many experiences, only with family as they are the only people I have told. I find that I forget about it alot and then I think oh yeah, that's right...which is upsetting. I wish I could just forget about it completely. It's only HSV-1 genital though so I suppose I am lucky. I have had this since early February and I am based in Brisbane. I am interested in the idea of an H event! x


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Begbie
Member since Mar-6-10
84 posts
Mar-24-10, 03:55 AM (CST)
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3. "RE: Australians"
In response to message #2
 
   Well at least you can forget about it some of the time. I'm still at the point where I can't go 5 minutes without thinking about it.
Even in my dreams. But it's getting better and I'll be OK.

H event would be good. Have you looked at Positive Singles if you are single and looking to meet people?

Unfortunately there aint no such thang as a time machine.


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amrita
Member since Jul-18-12
1 posts
Jul-18-12, 09:12 AM (CST)
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4. "RE: Australians"
In response to message #0
 
   Hi I have suffered this dreaded and painful virus since I was 19, given to me by me cheating live in boyfriend, who also accused me of giving it to him! Since 19 years of age i have had an attack almost every month, sometimes twice a month, lasting for up to 10 days, usually. I now am 48, that's a lot of attacks. A lot of pain, a lot of discomfort, and mental anguish. Yes it has hindered my life, and not just social life, but in many aspects. I could not give birth to my children naturally as both times when baby was due I had an attack, so had to have caesars. Disappointing and very humiliating. At times I get so angry at that lowlife that gave it to me (knowingly, and he gave it to many others) then other times i try to send him love and forgiveness in the hope that i will suffer no more, but nothing like that works. I have tried taking l lysene for long periods, sometimes i may get a month without an attack, but not often. So the expense of taking it I decided to stop. Doctor recommended that i use cold sore cream but that does nothing either. Doc's seem hesitant to prescribe anything as the side effects outweigh the benefits, that's scary in itself. I tried to figure out what my 'triggers' could be and decided it was peanuts, as i had read that food high in assinine can trigger herpes attacks. I had a month free of attacks and now it is back, I have had two attacks in two weeks, which is not that unusual apparently. If i catch a cold, i am sure to get an attack, as the immune system is low. I am now going to try having fresh made juices (by me) made from apple, carrot and beetroot with a pinch of cayenne pepper as I read today that it can assist in the releif of herpes as well as many other things. To the juice I also add, but it's not necessary, a pear, some celery, ginger, blueberries and anything else that i feel like adding. I am interested to see how the cayenne pepper goes, there is always hope! Yet hard to be hopeful after 30 years of this dreaded disease. Dis Ease would be a better explanation for it!
Psychosomatically i have tried loving it, surrounding it in love hearts, acknowledging that it's a part of me etc, i'm afraid that doesn't seem to work either, but will keep persisting with the positive thoughts, but I am human, and a human in regular pain, so it's hard not to curse it.
Over a 30 year period I have had to tell a few partners, which has been hard, but most don't care. My husband of 7 years never caught it (i was very careful, i wouldn't wish this on anyone else) after we broke up i have a new parter of 12 years now and only last few months did he contract it, sadly we had had too much to drink and it was in the 'shedding' period and a very unfortunate accident. He was happy to know that it wasn't cancer, he thought that's what he had! I was devastated when he told me, but he said accidents happen, was very understanding and I appreciate that, yet I still find times to beat myself up about that too, adding to the stress of it all. Mylocal gyno told me that one in four women in this area have herpes. I found that totally mind blowing that that could be so, of course it is just his opinion, and sometimes I'm not sure where doc's are coming from sometimes. So many women have caesars i'm sure that's why, I just wish there was not so much stigma attached to having it. It seems so shameful and dirty. I do know of around 8 people that have it, although I don't thinnk they know that i know and I would never approach them to talk about it (one is my brother in law and the other is a close friend of a close friend, people talk you know, which makes is even harder for me to tell anyone. I so want to go to my doctor and say "any news on cures or treatments for herpes cause I can't take it anymore" but I just can't do it. Thank god for the internet, maybe venting here will help expel the evil herpes virus from my soul, i'm sure it's embedded itself there!
I would love to hear in depth what other women have endured and how they handle it now, later in life. thanks for listening Amrita


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aysugnacar
Member since Aug-22-12
1 posts
Aug-22-12, 00:59 AM (CST)
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5. "RE: Australians"
In response to message #4
 
   Hi everyone i am new on this forum and looking forward to share my experiences .I just join this forum and its my first post reply .I am really glad while reading all such stories.

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